Recent Activity
Activity stream for all registered members at Science for ME.
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JohnTheJack liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I sent a very polite email earlier this week to Dr Cefai laying out my concerns with the study - that she was studying a self-selecting...
Jun 13, 2024 at 1:56 PM -
MrMagoo liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
Totally. If I had been taught pacing at an early stage I would probably still be working and worth millions. Instead of poor. I might...
Jun 13, 2024 at 1:53 PM -
JohnTheJack liked Amw66's post in the thread Esther Crawley.
All hail FND
Jun 13, 2024 at 1:53 PM -
JemPD liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
Totally. If I had been taught pacing at an early stage I would probably still be working and worth millions. Instead of poor. I might...
Jun 13, 2024 at 1:53 PM -
Eleanor liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Here's the latest correspondence with Cochrane. CEO Catherine Spencer wrote to me yesterday and I replied copying in COPE and...
Jun 13, 2024 at 1:53 PM -
JemPD liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
That's a funny image. A big muscley personal trainer yelling things like "for this set, push yourself to do as few reps as possible! I...
Jun 13, 2024 at 1:53 PM -
JemPD liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
We need an anti-coach to train us not to do so much “Come on, keep going, keep lying down! Don’t look at the state of the place, do not...
Jun 13, 2024 at 1:53 PM -
MrMagoo attached a file to the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
I’ve accessed and downloaded the closed caps document. Here are photos of Tysons talk I only skimmed it the PROMS data can be used for...
Jun 13, 2024 at 1:51 PM
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Missense liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
That may be lost in translation!
Jun 13, 2024 at 1:41 PM -
Missense liked Sean's post in the thread : TV casting call for people living with ME/CFS.
I believe the correct term is 'bang stick'.
Jun 13, 2024 at 1:41 PM -
Missense liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
At one point there was a stat often quoted that half of all CFS (don't think it was ME) patients who recovered relapse at some point,...
Jun 13, 2024 at 1:41 PM -
Missense liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
That was me in 1993. I started walking and then running again, in a national park behind where I lived. It went OK for a while. Then it...
Jun 13, 2024 at 1:41 PM -
MrMagoo liked Dolphin's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
I too couldn’t access files but video recording worked.
Jun 13, 2024 at 1:40 PM
