Recent Activity

Activity stream for all registered members at Science for ME.

  1. RaviHVJ replied to the thread News from the USA, United States of America.

    From the moonshot initiative: We’ve just gotten word that Senators now have until FRIDAY, MAY 10TH to sign the FY25 Long Covid funding...

    May 9, 2024 at 11:51 AM
  2. Trish liked Eleanor's post in the thread USA: NIH National Institutes of Health news - next event May 28 2024.

    Slide 19 of the presentation posted here:...

    Screenshot 2024-05-09 at 11.19.05.png May 9, 2024 at 11:47 AM
  3. Trish liked Hutan's post in the thread USA: NIH National Institutes of Health news - next event May 28 2024.

    They say they did. And Lucinda Bateman seems to be involved in, at least, the 'structured pacing' trial. I'm not sure what 'structured...

    May 9, 2024 at 11:47 AM
  4. Trish liked EmmaS302's post in the thread Open Investigating family planning, pregnancy, and parenting for people with ME/CFS - the faMELy study.

    Hello, I am part of a team of researchers at Newcastle University – funded by the ME Association, interested in finding out more about...

    1.png 2.png May 9, 2024 at 11:45 AM
  5. EndME liked Cinders66's post in the thread Help writing an email template to send the NIHR (coinciding with local billboards)?.

    These are examples of what NIHR were previously funding for ME/CFS (from searching s4ME forum) Paediatric chronic fatigue syndrome...

    May 9, 2024 at 11:43 AM
  6. Cinders66 replied to the thread Help writing an email template to send the NIHR (coinciding with local billboards)?.

    These are examples of what NIHR were previously funding for ME/CFS (from searching s4ME forum) Paediatric chronic fatigue syndrome...

    May 9, 2024 at 11:34 AM
  7. oldtimer liked Dolphin's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

    An issue with crowdfunding for individual studies is what you do with the money if you raise a substantial amount but not enough for the...

    May 9, 2024 at 11:30 AM
  8. oldtimer liked Solstice's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

    Yeah, I donate to the OMF too. There are individual projects that I might like better, but OMF for me was the easiest to donate to and...

    May 9, 2024 at 11:30 AM
  9. oldtimer liked Maat's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

    Great news. :) I've already formulated a legal argument to force government directed and arm's length funding to address shall we say,...

    May 9, 2024 at 11:30 AM
  10. oldtimer liked Tia's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

    @Simon M thank you so much for explaining this so clearly. It's exciting that this study is going ahead, the results will be useful...

    May 9, 2024 at 11:29 AM
  11. oldtimer liked Sasha's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

    This is fascinating and promising-looking stuff and even I understood it! :thumbup: What worries me about the funding is if a...

    May 9, 2024 at 11:29 AM
  12. oldtimer liked Simon M's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

    I'm glad it stuck! And being quoted on someone's fridge - years on - makes me very happy. Thank you.

    May 9, 2024 at 11:29 AM
  13. oldtimer liked butter.'s post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

    If Tronstadt helps them with methodology, is this attempt of replication an 'independent' replication? All in all, this still looks like...

    May 9, 2024 at 11:29 AM
  14. oldtimer liked Kitty's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

    Thanks for that, @Simon M, it does sound as if they've a good chance of picking it up if it's there to be found.

    May 9, 2024 at 11:29 AM
  15. oldtimer liked Simon M's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

    Yes, some positive results would certainly help with funding. As you say, our evidence base is patchy - and the lack of replications is...

    May 9, 2024 at 11:29 AM
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