Recent Activity
Activity stream for all registered members at Science for ME.
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Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I’m happy with the reports which visible spits out, and I can request further CSV symptom data extracts if I wish. I could do that and...
Jun 2, 2024 at 10:20 PM -
Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I’ve used free trackers like Bearable in the past to track symptoms. I often can’t speak so an app is preferable. There’s an issue...
Jun 2, 2024 at 10:20 PM -
Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
We certainly could, but it falls on deaf ears!
Jun 2, 2024 at 10:20 PM -
Peter Trewhitt liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
In a sense maybe, but what we normally call research is investigation that reliably transfers to a general situation. And when it comes...
Jun 2, 2024 at 10:20 PM -
Peter Trewhitt liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
To me, there might also be an opportunity to work on something sooner rather than later, iron out as many of the creases as we can, and...
Jun 2, 2024 at 10:19 PM -
Peter Trewhitt liked JemPD's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I am right that Keith is a patient arent I? just suddenly had a moment of doubt but dont i remember that Wessely etc discounted his...
Jun 2, 2024 at 10:19 PM -
Peter Trewhitt liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
They surely will have seen our letters and are free to read this thread.
Jun 2, 2024 at 10:19 PM -
Peter Trewhitt liked JellyBabyKid's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Oh. Oh heck. Stupid question, but has the S4ME letter been sent to Keith and Russell as well as the trustees..? Keith seems to be...
Jun 2, 2024 at 10:18 PM -
Peter Trewhitt liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Every pwME's efforts at pacing is a research exercise carried out by the pwME as we navigate every day's activity and rest. All I'm...
Jun 2, 2024 at 10:18 PM -
Peter Trewhitt liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes I agree absolutely on this, but it need to be done as a research exercise to see what predicts what.
Jun 2, 2024 at 10:18 PM -
Peter Trewhitt liked JemPD's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I completely agree, but the challenge is that Sarah Tyson... IS a patient. And the mother of another patient. Russell Fleming is a...
Jun 2, 2024 at 10:18 PM -
Peter Trewhitt liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I think I would have found it very helpful when I was newly learning to cope with symptoms and crashes and still working part time. It...
Jun 2, 2024 at 10:17 PM -
Yann04 liked forestglip's post in the thread GPT for ME/CFS Questions.
Done. Difference between regular ChatGPT and ME/GPT: "is me/cfs psychogenic?"
Jun 2, 2024 at 10:17 PM -
MelbME liked ME/CFS Skeptic's post in the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
Thanks for the explanation @MelbME although I must admit that I still don't fully get it. If the problem is the large variation in mice...
Jun 2, 2024 at 10:17 PM -
MelbME replied to the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
You would get much wilder variation in the groups if you did it that way and little chance of statistical significance. Though...
Jun 2, 2024 at 10:17 PM
