Recent Activity
Activity stream for all registered members at Science for ME.
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MrMagoo liked csinclair02's post in the thread : TV casting call for people living with ME/CFS.
Runners? What the hell. Even when my condition was very mild, I couldn't run.
Jun 12, 2024 at 1:25 PM -
cfsandmore liked RaviHVJ's post in the thread JAMA: Evidence Mounts That About 7% of US Adults Have Had Long COVID.
I find statistics like this slightly maddening - far more important than knowing how many people have experienced any symptoms 3 months...
Jun 12, 2024 at 1:22 PM -
LJord liked Eleanor's post in the thread Sound sensitivity.
(Not really sure where to post this, sorry if it's off topic) I was half-listening to the BBC 6 Music breakfast show as usual today....
Jun 12, 2024 at 1:19 PM -
Kitty liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Sounds wise. I wouldn’t be able to do anything for an hour, though, not even close, so even if I have something for a week my...
Jun 12, 2024 at 1:19 PM -
MrMagoo liked Amw66's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
Significant thread on X from Dr Claire Taylor [MEDIA] If someone is bedbound with #longcovid & hospitalised, withholding urine...
Jun 12, 2024 at 1:15 PM -
Simon M liked Mij's post in the thread ME/CFS services in the United Kingdom.
I'm not sure where to post this for pwME in the U.K Some might not be aware of this code for housebound patients? Code 13CA [MEDIA]
Jun 12, 2024 at 1:14 PM -
MrMagoo liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Just to go back to the question that started me on this train of thought: are people asked about capacity for work/ study/ etc in other...
Jun 12, 2024 at 1:13 PM -
MrMagoo liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If you wanted to push it and get really proactive then it could be used by better GPs to signpost help and when to think of it. The...
Jun 12, 2024 at 1:13 PM -
MrMagoo liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yep. And also if they took the opportunity to have this bit in then it might mean those who have difficult people at home at least have...
Jun 12, 2024 at 1:12 PM -
pooriepoor91 liked Dakota15's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Sharing this message I received today from an individual with HHS, if helpful to know for anyone still working on this here: "Our...
Jun 12, 2024 at 1:12 PM -
MrMagoo liked Sean's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
There was a 2.5 year long-term follow-up paper. Some of the control group did cross-over and try CBT/GET after the trial ended. But...
Jun 12, 2024 at 1:11 PM -
cfsandmore liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Dear Joan, I’m contacting you from Electric Robin, an award-winning UK-based creative production company. You can find out more about...
Jun 12, 2024 at 1:11 PM
