Recent Activity

Activity stream for all registered members at Science for ME.

  1. Joan Crawford replied to the thread : TV casting call for people living with ME/CFS.

    I blanked out the presenters mentioned. Janet is I think a producer or similar.

    Jun 12, 2024 at 12:18 PM
  2. forestglip liked Eleanor's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    or maybe she's just getting better.

    Jun 12, 2024 at 12:17 PM
  3. forestglip liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...

    Jun 12, 2024 at 12:17 PM
  4. forestglip liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    I agree. My concern is that the reference to untested treatments will make it only too easy for health professionals to say to...

    Jun 12, 2024 at 12:17 PM
  5. forestglip liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...

    Jun 12, 2024 at 12:17 PM
  6. forestglip liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    I think there may be quite significant repercussions for Dr Kane over this. Giving untested anticoagulant therapy to children outside...

    Jun 12, 2024 at 12:17 PM
  7. forestglip liked Trish's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    I agree there's cause for concern. Suggesting private treatment has something useful to offer for kids with Long Covid is wrong. Nobody...

    Jun 12, 2024 at 12:17 PM
  8. Eleanor liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...

    Jun 12, 2024 at 12:14 PM
  9. Eleanor replied to the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    or maybe she's just getting better.

    Jun 12, 2024 at 12:14 PM
  10. Trish liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.

    I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...

    Jun 12, 2024 at 12:04 PM
  11. Trish liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.

    This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...

    Jun 12, 2024 at 12:04 PM
  12. Trish liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...

    Jun 12, 2024 at 12:03 PM
  13. Possibly James May liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...

    Jun 12, 2024 at 12:03 PM
  14. Possibly James May liked Trish's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    I agree there's cause for concern. Suggesting private treatment has something useful to offer for kids with Long Covid is wrong. Nobody...

    Jun 12, 2024 at 12:02 PM
  15. Possibly James May liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    I think there may be quite significant repercussions for Dr Kane over this. Giving untested anticoagulant therapy to children outside...

    Jun 12, 2024 at 12:02 PM
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