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alktipping liked Lou B Lou's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.

That would be a fruitful subject for an incisive and intrepid journalist. How can NHS Drs provide safe and ethical services to the...

Kitty liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Maybe there should be an annual review PROMS

Kitty liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Care and support plans...

Kitty replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

My GP practice does both my reviews, even though I'm also reviewed by the rheumatology team. I think it's quite normal for primary care...

alktipping liked bobbler's post in the thread UK: University College London hospitals (NHS).

almost everyone who can do any marching has been told and believes, somewhere in between where it comes to actually doing it and they...

alktipping liked bobbler's post in the thread UK: University College London hospitals (NHS).

Sounds also like you mightn't fancy putting either (what they actually want to do, or what they should be doing) down in writing. The...

Joan Crawford liked Sean's post in the thread UK: University College London hospitals (NHS).

This.

Lou B Lou liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Maybe there should be an annual review PROMS

alktipping liked MrMagoo's post in the thread UK: University College London hospitals (NHS).

alktipping liked Wyva's post in the thread USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021, updated June 2024.

I kind of skimmed through it. Is it really just two pages? I somehow thought the interim guidance had more info than this one, but I may...

boolybooly liked Andy's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.

Highlights In consultations for PPS/FDs, stigmatisation can occur in various ways in the communication process. Current models do not...

alktipping liked Sean's post in the thread USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021, updated June 2024.

That is encouraging.

alktipping liked ahimsa's post in the thread USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021, updated June 2024.

#MEAction article from June 16: CDC releases post-COVID guidance: 4 takeaways for ME/CFS Here are the 4 takeaways listed: 1. ME/CFS...

alktipping liked DigitalDrifter's post in the thread Concerns About The ME Association's Prevalence Figures For ME & Long Covid.

https://www.s4me.info/threads/office-of-national-statistics-prevalence-of-ongoing-symptoms-following-coronavirus-covid-19-infection-in-th...

Lindberg liked SNT Gatchaman's post in the thread NIH study - where to start?.

#noteverytest. Eg I didn't see any mention of vasopressin. The below poster abstract was published after the NIH paper, but...