Recent Activity

ME/CFS Skeptic posted a new thread.

Rehabilitation Interventions for Physical Capacity and Quality of Life in Adults With Post-COVID-19 Condition, 2023, Pouliopoulou et al.

Abstract Importance: Current rehabilitation guidelines for patients with post-COVID-19 condition (PCC) are primarily based on expert...

Forum: Long Covid research

JellyBabyKid liked Braganca's post in the thread Sound sensitivity.

Hi Wyva, I’ve had light and sound sensitivity which started year 2 of my illness. It’s much worse for sharp, loud or high pitched voices...

rvallee liked Sean's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.

Free-text analysis revealed stress and trauma as the most common causal attributions, Was that before or after they had those casual...

rvallee replied to the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.

But, they don't have that. An "understandable illness model" is just nonsense, Scientology's "ghosts of dead aliens" is an...

JellyBabyKid liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.

I suspect the majority of patients will just assume that a private specialist will be better informed, more qualified and less time-poor...

rvallee liked NelliePledge's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.

Tripe

JellyBabyKid liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

I wouldn’t really expect a review to ask about work, but I would have expected a review of my ME to end up with me talking about work as...

JellyBabyKid liked Sean's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.

Free-text analysis revealed stress and trauma as the most common causal attributions, Was that before or after they had those casual...

Solstice liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.

If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...

Hutan liked Solstice's post in the thread News from Austria and Switzerland.

If we're pitching theories, I think it's just lord Chtulhu working in nefarious ways.

tornandfrayed liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Most people with a 'proper' chronic illness have an annual review, don't they? I have them for two different conditions, neither of...

Solstice liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.

I suspect the majority of patients will just assume that a private specialist will be better informed, more qualified and less time-poor...

Solstice liked Lou B Lou's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.

The fault lies with the Drs who feel free to ridicule, denigrate, mock, to express and incite hatred towards certain groups of patients....

Trish liked Wyva's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.

This is my favourite part, from the art therapy abstract: "The art therapy protocol consists of 6 sessions with the following themes:...