Recent Activity
Activity stream for all registered members at Science for ME.
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Yann04 liked bobbler's post in the thread Esther Crawley.
"appointed as a Consultant Paediatrics/Psychiatrist"
Jun 11, 2024 at 7:57 PM -
Hutan liked poetinsf's post in the thread NIH study - where to start?.
If I recall correctly, the 1-day CPET was used as a proof that the subjects were able to exert as well as the controls. PEM was...
Jun 11, 2024 at 7:55 PM -
Hutan liked forestglip's post in the thread NIH study - where to start?.
Yeah, looking at the actual study, I think this is the extent of testing performed one or more days post-CPET: And no meaningful...
Jun 11, 2024 at 7:54 PM -
Hutan liked Yann04's post in the thread NIH study - where to start?.
PEM is mentioned 3 times in the study, as opposed to 26 times for “effort preference”. There no mention of PEM anywhere in their...
Jun 11, 2024 at 7:53 PM -
Hutan liked poetinsf's post in the thread NIH study - where to start?.
To me, it's not the "effort preference" that is the most objectionable. It could well be that ME/CFS patients can exert as much as...
Jun 11, 2024 at 7:53 PM -
Hutan liked rvallee's post in the thread NIH study - where to start?.
Very damning when presented all side-by-side. This really was mainly a biopsychosocial paper, having chosen to make the irrelevant...
Jun 11, 2024 at 7:52 PM -
Hutan liked Yann04's post in the thread NIH study - where to start?.
@cassava7 I think this piece is quite good at summarising the potential problems with the study, while staying neutral in tone, and...
Jun 11, 2024 at 7:49 PM -
Hutan liked SNT Gatchaman's post in the thread The Comeback Study: fecal microbiota transplant for ME/CFS.
Received 01 March 2023, accepted 11 March 2024, published June 10, 2024. Faecal microbiota transplantation FMT in Norwegian outpatients...
Jun 11, 2024 at 7:47 PM -
Hutan liked FMMM1's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I was wondering if post election we ask a parliamentary question re how these interventions are being evaluated; in particular are real...
Jun 11, 2024 at 7:46 PM -
Hutan liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
And you’ve just reminded me of the whole ‘frames of reference issue’ that the MS paper @Hutan linked to earlier on in this thread lists....
Jun 11, 2024 at 7:45 PM -
Hutan liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Delivery plan!...
Jun 11, 2024 at 7:43 PM -
Hutan liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The government thingie, that got put on hold when the election was called. I'm so brain fogged I can't even think of a term to search...
Jun 11, 2024 at 7:43 PM
