Recent Activity
Activity stream for all registered members at Science for ME.
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Kitty liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Definitely. It should be the only monitoring that counts. Particularly until we ever get past the phase where treatments and measures...
Jun 11, 2024 at 10:12 PM -
Kitty liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I think it would be a good question for the APPG - what about long term 3,5,10 year monitoring of ME? For context, most clinics...
Jun 11, 2024 at 10:11 PM -
Kitty liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The answer to any Parliamentary Question is simple. It was a project involving people with ME and funded by the ME Association. What...
Jun 11, 2024 at 10:11 PM -
Kitty liked FMMM1's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Sounds like a good idea. I attend these meetings -...
Jun 11, 2024 at 10:11 PM -
Kitty liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Delivery plan!...
Jun 11, 2024 at 10:11 PM -
Amw66 liked rvallee's post in the thread BMJ - Not "all in the mind", 2024, Richards.
Heeeh... not true. Not entirely. It's only true because psychosomatic medicine is not formally a specialty of its own, but for decades...
Jun 11, 2024 at 10:07 PM -
Solstice liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I randomly stumbled across a post in the medicine community discussion the MTHFR gene mutation, and wow, these medical professionals...
Jun 11, 2024 at 10:06 PM -
Yann04 liked SNT Gatchaman's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
@MelbME this is only a poster abstract, unreplicated, and I don't know what ME criteria was used, but allegedly 82% of patients had...
Jun 11, 2024 at 10:01 PM -
RaviHVJ liked Hoopoe's post in the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.
Yes it fills me with despair. Just look at this immensely stupid circular logic here: By definition, unexplained persistent symptoms...
Jun 11, 2024 at 10:00 PM -
forestglip liked SNT Gatchaman's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
@MelbME this is only a poster abstract, unreplicated, and I don't know what ME criteria was used, but allegedly 82% of patients had...
Jun 11, 2024 at 9:58 PM -
SNT Gatchaman replied to the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
@MelbME this is only a poster abstract, unreplicated, and I don't know what ME criteria was used, but allegedly 82% of patients had...
Jun 11, 2024 at 9:56 PM -
FMMM1 replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If a public service [NHS England] is launched then it's reasonable to ask that appropriate monitoring is included --- in fact that's...
Jun 11, 2024 at 9:52 PM -
Yann04 liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Thanks Joan. Very good reply.
Jun 11, 2024 at 9:52 PM -
Peter Trewhitt liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I randomly stumbled across a post in the medicine community discussion the MTHFR gene mutation, and wow, these medical professionals...
Jun 11, 2024 at 9:50 PM -
Peter Trewhitt liked Mij's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
[MEDIA] [MEDIA] Dr. Keagen's responses on X I find keeping up with the emerging research on long-covid a bit daunting, and I teach it....
Jun 11, 2024 at 9:49 PM
