Recent Activity

Activity stream for all registered members at Science for ME.

  1. Trish replied to the thread Esther Crawley.

    I am not sure what it's rignt to say about this. It seems to me it's very likely that an early retirement may be on personal grounds...

    Jun 12, 2024 at 9:37 PM
  2. dave30th replied to the thread Esther Crawley.

    really? If she qualified in 1991? I assumed mid-50s. Might have to correct my post although I said "presumably."

    Jun 12, 2024 at 9:36 PM
  3. FMMM1 liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.

    Yeah but nobody knows what. And if you seek hard enough you will find all sorts of made up stuff. At some point everyone involved has to...

    Jun 12, 2024 at 9:35 PM
  4. Jonathan Edwards replied to the thread Esther Crawley.

    It is the obvious thing to do unless you want to run private practice. To continue having the right to practice you need to ay GMC fees...

    Jun 12, 2024 at 9:35 PM
  5. FMMM1 liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.

    EDS is a group of monogenic genetic diseases, most of which we know the gene for and are easily tested for. There are 13 main types....

    Jun 12, 2024 at 9:34 PM
  6. FMMM1 liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.

    I think that is fair. So I guess that my conclusion that there is an urgent need for some sort of consensus amongst the medical...

    Jun 12, 2024 at 9:33 PM
  7. Trish liked Andy's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.

    Thread on HADS here, https://www.s4me.info/threads/the-hospital-anxiety-and-depression-scale-hads-a-discussion.10160/

    Jun 12, 2024 at 9:31 PM
  8. Trish liked Nightsong's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.

    Problems with HADS have been discussed on S4ME before; I did notice, though, that they're using a different scale for children: This...

    Jun 12, 2024 at 9:31 PM
  9. Trish liked Yann04's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.

    On twitter, someone pointed out the Depression and Anxiety questionnaire used would give false positives based on being sick. Quote:...

    Jun 12, 2024 at 9:30 PM
  10. Trish liked Yann04's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..

    I could see this being said by a BPS person. Imagine: but Long Covid is not a psychological illness, and such explanations of physical...

    Jun 12, 2024 at 9:30 PM
  11. Trish liked SNT Gatchaman's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..

    It could be a little more clear I guess: "but Long Covid is not a psychological illness, and such explanations of physical symptoms...

    Jun 12, 2024 at 9:30 PM
  12. Trish liked rvallee's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..

    I don't think there's evidence of that. Psychological suffering is associated with inflammation and immune system alterations, but there...

    Jun 12, 2024 at 9:30 PM
  13. Jonathan Edwards replied to the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.

    The trouble with that report is that it is only two families and the knock out mice had defects in multiple organ systems - i.e. not...

    Jun 12, 2024 at 9:30 PM
  14. Trish liked Kitty's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.

    What about when the subject moves their hands back so as not to make contact? That would be my instinctive reaction! :laugh:

    Jun 12, 2024 at 9:29 PM
  15. Trish liked Hutan's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.

    Thanks @Wyva, so we have a whole batch of papers on poorly conceived studies to look forward to. When no cognitive dysfunction shows...

    Jun 12, 2024 at 9:29 PM
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