Recent Activity

Activity stream for all registered members at Science for ME.

  1. Wyva liked Trish's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    I've been reading Jeanette Burmeister's analysis, not having managed to find the time to do any analysis myself. Huge thanks to Jeanette...

    Jun 13, 2024 at 10:28 AM
  2. Peter Trewhitt liked Trish's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    I agree there's cause for concern. Suggesting private treatment has something useful to offer for kids with Long Covid is wrong. Nobody...

    Jun 13, 2024 at 10:28 AM
  3. Peter Trewhitt liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    I think there may be quite significant repercussions for Dr Kane over this. Giving untested anticoagulant therapy to children outside...

    Jun 13, 2024 at 10:28 AM
  4. Peter Trewhitt liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...

    Jun 13, 2024 at 10:27 AM
  5. Peter Trewhitt liked SNT Gatchaman's post in the thread Opinion Challenges and opportunities in long COVID research, 2024, Rebecca E. Hamlin and Catherine A. Blish.

    Challenges and opportunities in long COVID research Rebecca E. Hamlin; Catherine A. Blish Long COVID (LC) is a condition in which...

    Jun 13, 2024 at 10:26 AM
  6. Wyva liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...

    Jun 13, 2024 at 10:26 AM
  7. Peter Trewhitt liked John Mac's post in the thread Esther Crawley.

    A very, very wide spectrum

    Jun 13, 2024 at 10:26 AM
  8. Peter Trewhitt liked FMMM1's post in the thread Esther Crawley.

    I gather, from what a neighbour has told me, that there's quite a bit of work involved in maintaining your registration - demonstrating...

    Jun 13, 2024 at 10:26 AM
  9. Wyva liked forestglip's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    The comparison is astounding: NIH chart: [ATTACH] Chart created from raw data (from blog): [ATTACH] And even if counting the little...

    13_Figure3a.png 17_AreaGraph_HardTaslkChoices.png 21_AverageRewaredsGramted.png Jun 13, 2024 at 10:26 AM
  10. Peter Trewhitt liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.

    Here's the latest correspondence with Cochrane. CEO Catherine Spencer wrote to me yesterday and I replied copying in COPE and...

    Jun 13, 2024 at 10:25 AM
  11. FMMM1 liked Jonathan Edwards's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    I may be have been naïve, but to begin with I gave everyone the benefit of the doubt. But every time I go through these three stages...

    Jun 13, 2024 at 10:25 AM
  12. bobbler liked FMMM1's post in the thread Esther Crawley.

    I gather, from what a neighbour has told me, that there's quite a bit of work involved in maintaining your registration - demonstrating...

    Jun 13, 2024 at 10:25 AM
  13. Wyva liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...

    Jun 13, 2024 at 10:25 AM
  14. Wyva liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read...

    Jun 13, 2024 at 10:25 AM
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