Recent Activity
Activity stream for all registered members at Science for ME.
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Peter Trewhitt liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 12, 2024 at 9:59 PM -
Peter Trewhitt liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...
Jun 12, 2024 at 9:59 PM -
Peter Trewhitt liked Tia's post in the thread : TV casting call for people living with ME/CFS.
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...
Jun 12, 2024 at 9:59 PM -
Peter Trewhitt liked Trish's post in the thread : TV casting call for people living with ME/CFS.
This sort of ignorance is one reason why I don't like ME/CFS being described as a disability. Better, I think, to describe it as a...
Jun 12, 2024 at 9:58 PM -
Peter Trewhitt liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
Is it worth getting in touch with the presenters too just offering more info and being gently enlightening. As a Paralympian or someone...
Jun 12, 2024 at 9:58 PM -
bobbler replied to the thread : TV casting call for people living with ME/CFS.
I find in this situation using the term with these people of ‘you are out of date and working based on old and harmful guidelines snd...
Jun 12, 2024 at 9:53 PM -
forestglip liked Nightsong's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
Problems with HADS have been discussed on S4ME before; I did notice, though, that they're using a different scale for children: This...
Jun 12, 2024 at 9:49 PM -
Trish replied to the thread Esther Crawley.
Nor necessarily. Lots of retired people use their time in retirement to take up voluntary activities related to their profession.For...
Jun 12, 2024 at 9:49 PM -
Lindberg liked mango's post in the thread Sweden: ME clinic and Masano Health digital rehab for ME/CFS.
Another great opinion piece! Fantastic effort, @MittEremltage :thumbup: Insändare: Stryk ME-mottagningen från listan på besparingar...
Jun 12, 2024 at 9:48 PM -
Trish liked Jonathan Edwards's post in the thread Esther Crawley.
If she qualified in 1991 should would be expected to be 58 but if for some reason she completed her medical training late, maybe having...
Jun 12, 2024 at 9:44 PM -
Lindberg liked Dakota15's post in the thread Webinar: USA: National Academy of Medicine: New Definition Proposed for Long COVID, June 11, 2024, 1 PM EDT.
KQED: 'National Academies Pushes for New Definition of Long COVID' 'Long COVID afflicts an estimated 17 million Americans. We’ll talk...
Jun 12, 2024 at 9:44 PM -
Trish liked Tia's post in the thread : TV casting call for people living with ME/CFS.
It's a bit like saying we're looking for a person with celiac disease to come on our programme about eating bread. There'll always be...
Jun 12, 2024 at 9:43 PM -
Jonathan Edwards replied to the thread Esther Crawley.
If she qualified in 1991 should would be expected to be 58 but if for some reason she completed her medical training late, maybe having...
Jun 12, 2024 at 9:43 PM -
Trish liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The trouble with that report is that it is only two families and the knock out mice had defects in multiple organ systems - i.e. not...
Jun 12, 2024 at 9:43 PM -
Trish liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I just stumbled across this and sent it too my mum five minutes ago haha — cheers
Jun 12, 2024 at 9:42 PM
