Recent Activity
Activity stream for all registered members at Science for ME.
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Sean liked Kitty's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
True, but pwME also have to be prepared for them to say, "All we can recommend is pacing." Some recently diagnosed pwME will find it...
Jun 13, 2024 at 2:39 AM -
Sean liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The trouble with that report is that it is only two families and the knock out mice had defects in multiple organ systems - i.e. not...
Jun 13, 2024 at 2:39 AM -
Sean liked Keela Too's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I think part of our problem with ME is that some medical professionals think exactly this way about ME and effectively want to shut down...
Jun 13, 2024 at 2:38 AM -
Sean liked MSEsperanza's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Apologies for just popping in -- not able to participate in the discussion but the question about what could doctors do to help people...
Jun 13, 2024 at 2:38 AM -
Sean liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
It may be difficult because, as Trish says, there is so much muddled thinking everywhere. But the first thing I would say is that 'the...
Jun 13, 2024 at 2:38 AM -
Sean replied to the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
The finding that avoidance behaviour mediated change in several outcomes supported our theoretical fear-avoidance model on which DS-CBT...
Jun 13, 2024 at 2:37 AM -
alex3619 replied to the thread : TV casting call for people living with ME/CFS.
I did this for a while in the 80s. There is still an issue with getting to the range and back again.
Jun 13, 2024 at 2:36 AM -
Sean liked rvallee's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
They're writing a paper... about having done a study? Which is already published? Which they recognize was not statistically...
Jun 13, 2024 at 2:33 AM -
Sean liked Mij's post in the thread Federal Government, Clinicians, Employers, and Others Should Adopt New Definition for LC to Aid in Consistent Diagnosis, Documentation, and Treatment.
News Release | June 11, 2024 WASHINGTON — A new National Academies of Sciences, Engineering, and Medicine report says the federal...
Jun 13, 2024 at 2:28 AM -
Sean liked rvallee's post in the thread National Academies: New Report Reviews Evidence on Long COVID Diagnosis, Risk, Symptoms, and Functional Impact for Patients 2024.
I'm seeing a few mentions of how there's now an "official definition" of LC, but aside from a few details, this is basically the same...
Jun 13, 2024 at 2:28 AM -
forestglip liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...
Jun 13, 2024 at 2:28 AM -
Sean liked mango's post in the thread Sweden: ME clinic and Masano Health digital rehab for ME/CFS.
Another great opinion piece! Fantastic effort, @MittEremltage :thumbup: Insändare: Stryk ME-mottagningen från listan på besparingar...
Jun 13, 2024 at 2:28 AM -
Sean liked mango's post in the thread Sweden: ME clinic and Masano Health digital rehab for ME/CFS.
Great letter/opinion piece published in a local online newspaper today, written by @MittEremltage :thumbup: Insändare: Rädda regionens...
Jun 13, 2024 at 2:28 AM -
Sean replied to the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...
Jun 13, 2024 at 2:27 AM
