Recent Activity
Activity stream for all registered members at Science for ME.
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bobbler liked wingate's post in the thread ME & Chronic Illness Podcast: Post-Exertional Mayonnaise.
I've only just gotten through the intro of this episode but when he jokingly introduced Oonagh as an "anti-recovery activist" I lol....
Jun 13, 2024 at 10:07 AM -
Kitty liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
That's a funny image. A big muscley personal trainer yelling things like "for this set, push yourself to do as few reps as possible! I...
Jun 13, 2024 at 10:05 AM -
Kitty liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
We need an anti-coach to train us not to do so much “Come on, keep going, keep lying down! Don’t look at the state of the place, do not...
Jun 13, 2024 at 10:05 AM -
Kitty liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
I did this for a while in the 80s. There is still an issue with getting to the range and back again.
Jun 13, 2024 at 10:05 AM -
Kitty liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
That may be lost in translation!
Jun 13, 2024 at 10:05 AM -
Kitty liked Sean's post in the thread : TV casting call for people living with ME/CFS.
I believe the correct term is 'bang stick'.
Jun 13, 2024 at 10:05 AM -
Kitty liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
That was me in 1993. I started walking and then running again, in a national park behind where I lived. It went OK for a while. Then it...
Jun 13, 2024 at 10:05 AM -
Kitty liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
At one point there was a stat often quoted that half of all CFS (don't think it was ME) patients who recovered relapse at some point,...
Jun 13, 2024 at 10:05 AM -
Kitty liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
Or ice skating for the over 100s in Costa Rica.
Jun 13, 2024 at 10:04 AM -
Kitty liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Doctors have to say we don't know, we got nothing. Equally patients have to hear and accept it. And not just patients, but also their...
Jun 13, 2024 at 10:04 AM -
John Mac attached a file to the thread UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 (including PIP consultation).
Work Capability Assessments to December 2024 [ATTACH]...
Jun 13, 2024 at 9:58 AM
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Milo liked Trish's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I've been reading Jeanette Burmeister's analysis, not having managed to find the time to do any analysis myself. Huge thanks to Jeanette...
Jun 13, 2024 at 9:53 AM -
Milo liked Jonathan Edwards's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I may be have been naïve, but to begin with I gave everyone the benefit of the doubt. But every time I go through these three stages...
Jun 13, 2024 at 9:53 AM
