Recent Activity
Activity stream for all registered members at Science for ME.
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rvallee replied to the thread GPT for ME/CFS Questions.
Since there will be better solutions on a regular basis, the most useful work IMO would be to build a vetted catalogue of documents and...
Jun 3, 2024 at 12:54 AM -
Kitty liked NelliePledge's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I don’t see why malaise couldn’t be understood in the same way in English, probably because I knew the French I’ve never felt it to be...
Jun 3, 2024 at 12:47 AM -
Kitty liked rvallee's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
It sure would be great if there was a better term, because it's a really important concept. I don't think it's common in English, but...
Jun 3, 2024 at 12:47 AM -
Kitty liked MrMagoo's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
A lot of definitions of malaise are “a feeling of unease” which can be read more than one way. Certainly if you feel ill, you are not at...
Jun 3, 2024 at 12:46 AM -
Kitty liked DigitalDrifter's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
They mean different things to different people but I think diluting the criteria to allow for fatigue after exercise can be highly...
Jun 3, 2024 at 12:46 AM -
Kitty liked poetinsf's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
If you are asking if I get brain fog, yes, I still get it as a part of PEM. But the cognitive PEM has never been nearly as big a problem...
Jun 3, 2024 at 12:46 AM -
Kitty liked MrMagoo's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I agree, I don’t think it’s used “medically” and in general parlance Ithink it’s used interchangeably with fatigue
Jun 3, 2024 at 12:46 AM -
forestglip liked Jaybee00's post in the thread Lou Gehrig Day—ALS (USA) June 2.
MLB commemorates 4th annual Lou Gehrig Day https://www.mlb.com/news/mlb-commemorates-4th-annual-lou-gehrig-day...
Jun 3, 2024 at 12:45 AM -
Kitty liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Ps the PROM also isn’t just 20th century but only used to measure ‘delivery’ and not impact or whether the treatment works in areas that...
Jun 3, 2024 at 12:44 AM -
Kitty liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
But not cherry picked and separated data - the reasons the trackers have become of worth is when eg with @MrMagoo recebt example they’ve...
Jun 3, 2024 at 12:44 AM -
Kitty liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The issue no one talks of is coercion and all of the forms that come under this (social pressure , culture, all these links to schools,...
Jun 3, 2024 at 12:44 AM
