Recent Activity
Activity stream for all registered members at Science for ME.
-
Amw66 liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
that's the safest and most appropriate one, and also closest to an actual 'medical' appointment. ie pointing people to how to use such...
Jun 3, 2024 at 5:14 AM -
Amw66 liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
this
Jun 3, 2024 at 5:14 AM -
forestglip replied to the thread READ FIRST: Welcome to the MEpedia subforum!.
The first real statistics are available. I set it to run at midnight once a day. Just this first "day" of views is only six hours long....
Jun 3, 2024 at 5:11 AM -
Amw66 liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Ps the PROM also isn’t just 20th century but only used to measure ‘delivery’ and not impact or whether the treatment works in areas that...
Jun 3, 2024 at 5:10 AM -
Amw66 liked Dolphin's post in the thread USA: NIH National Institutes of Health news - next events May 28 2024.
Recording when ME/CFS Research Roadmap was discussed during the National Advisory Neurological Disorders and Stroke (NANDS) Council...
Jun 3, 2024 at 5:02 AM -
Amw66 liked forestglip's post in the thread 2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May.
Health Rising blog about the symposium:...
Jun 3, 2024 at 5:01 AM -
Amw66 liked SNT Gatchaman's post in the thread UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024.
[MEDIA]
Jun 3, 2024 at 5:01 AM -
bobbler replied to the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
and importantly these days is how it is interpreted as 'to be treated' by even nice GPs has been influenced by certain pushes based on...
Jun 3, 2024 at 4:35 AM -
bobbler replied to the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Agree, that it is interesting to hear the history and how it might like many other things have been something serious back then, but if...
Jun 3, 2024 at 4:29 AM -
SNT Gatchaman replied to the thread UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024.
[MEDIA]
Jun 3, 2024 at 4:23 AM -
SNT Gatchaman replied to the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
Presentation from the senior author at UniteToFight. [MEDIA]
Jun 3, 2024 at 4:22 AM -
bobbler liked NelliePledge's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I don’t see why malaise couldn’t be understood in the same way in English, probably because I knew the French I’ve never felt it to be...
Jun 3, 2024 at 4:19 AM -
bobbler replied to the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Over there/in other countries did the medical profession (I don't know if they still do) write patient notes and medications etc in...
Jun 3, 2024 at 4:18 AM -
bobbler liked rvallee's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
It sure would be great if there was a better term, because it's a really important concept. I don't think it's common in English, but...
Jun 3, 2024 at 4:03 AM -
bobbler liked MrMagoo's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
A lot of definitions of malaise are “a feeling of unease” which can be read more than one way. Certainly if you feel ill, you are not at...
Jun 3, 2024 at 4:02 AM
