Recent Activity
Activity stream for all registered members at Science for ME.
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Trish liked John Mac's post in the thread Esther Crawley.
A very, very wide spectrum
Jun 13, 2024 at 10:43 AM -
Missense liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Inability to recall the word rifle. "Where's my long shooty thing?"
Jun 13, 2024 at 10:43 AM -
Missense liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
'Inability to remember what you are supposed to be shooting at.' .
Jun 13, 2024 at 10:43 AM -
Missense liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
And the cognitive ones – 'inability to remember where you left the rifle'.
Jun 13, 2024 at 10:43 AM -
Missense liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
Ha Ha Ha!!!! Better clear the place first! Some pwme have serious visual/spatial impairments. And the CCC does mention as a...
Jun 13, 2024 at 10:43 AM -
Trish liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
No wonder it took Walitt and Nath took so long to write the paper. They had to find a way to present the data so it showed what they...
Jun 13, 2024 at 10:43 AM -
Missense liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
Rifle shooting? Especially the category where you can lie down?
Jun 13, 2024 at 10:43 AM -
Missense liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Dunno, but I reckon the cross-country sitting down would be the best sport to train for.
Jun 13, 2024 at 10:43 AM -
Missense liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Yes it would! I would hope the producers are aware of the guidance, but then again I can think of some ME clinics/physios who would...
Jun 13, 2024 at 10:43 AM -
Missense liked Mij's post in the thread : TV casting call for people living with ME/CFS.
I was able to run during the earlier years of M.E and continued to do so even when I experienced severe PEM and recovered after 3-4...
Jun 13, 2024 at 10:43 AM -
Ken Turnbull replied to the thread Monitoring Carotid Blood Flow Using In-Ear Wearable Device During Tilt-Table Testing, 2023, Hemantkumar Tripathi MD et al.
Of no scientific note: the company has changed name to "Lumia". The press release doesn't say why.
Jun 13, 2024 at 10:42 AM -
SNT Gatchaman liked Trish's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I've been reading Jeanette Burmeister's analysis, not having managed to find the time to do any analysis myself. Huge thanks to Jeanette...
Jun 13, 2024 at 10:42 AM -
Trish liked Sean's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
The finding that avoidance behaviour mediated change in several outcomes supported our theoretical fear-avoidance model on which DS-CBT...
Jun 13, 2024 at 10:42 AM -
Peter Trewhitt liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
No wonder it took Walitt and Nath took so long to write the paper. They had to find a way to present the data so it showed what they...
Jun 13, 2024 at 10:42 AM -
Peter Trewhitt liked Andy's post in the thread Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed [PPI]... 2024 Engelaar et al.
Full title: Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed patient...
Jun 13, 2024 at 10:42 AM
