Recent Activity

Chezboo liked ME/CFS Skeptic's post in the thread Three-year outcomes of post-acute sequelae of COVID-19, 2024, Cai, Xie, Topol, Al-Aly.

They used a veterans database where only 10% of participants were women. Long Covid mostly affects women so probably not an ideal cohort...

Milo liked Jonathan Edwards's post in the thread Closed USA, Texas - Long Covid stem cell trial - Hope Biosciences.

So taking cells out of your left arm and putting them in the right does nothing, as expected. There is no way this is a 'placebo...

Milo liked RaviHVJ's post in the thread Closed USA, Texas - Long Covid stem cell trial - Hope Biosciences.

Results just released, not great....

SNT Gatchaman liked Hutan's post in the thread Functional Neurological Disorders: Challenging the Mainstream Agnostic Causative Position 2024 Scamvougeras and Castle.

And so too does CBT for ME/CFS, it has much the same components ('You are not a reliable interpreter of what you are feeling', 'You need...

Deanne NZ liked MrMagoo's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.

I was diagnosed with Fibromyalgia first, I have no idea whether I really have it though. I have pain it waxes and wanes. Who knows? I’d...

Milo replied to the thread Open Medicine Foundation (OMF).

This may be a bit off topic but if you (or collaborators) are looking for research leads, I know of many, too many pwME that have a...

Milo liked MSEsperanza's post in the thread Open Medicine Foundation (OMF).

As improvement occurred only several months after infusions were given I think it's unlikely that any outcomes measured an actual effect...

Milo liked MelbME's post in the thread Open Medicine Foundation (OMF).

We will get through ethics but there are a lot of hoops. I could see at many steps it would be even more difficult if the treatment had...

forestglip liked Amw66's post in the thread 2024: Twitter campaign aimed at John Oliver and Jon Stewart.

forestglip liked Amw66's post in the thread 2024: Twitter campaign aimed at John Oliver and Jon Stewart.

Hutan replied to the thread Functional Neurological Disorders: Challenging the Mainstream Agnostic Causative Position 2024 Scamvougeras and Castle.

And so too does CBT for ME/CFS, it has much the same components ('You are not a reliable interpreter of what you are feeling', 'You need...

Sean liked Kitty's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.

Behaviourally, they will all engage in sacrifice and some will engage in time theft. By sacrifice, I mean giving up some things...

Sean liked Kitty's post in the thread Gordon Waddell, back pain, the subversion of the biopsychosocial model, and the UK government's development of a victim-blaming approach to disability.

I think I know what you mean, but actually general practitioners do understand some of the social factors and would love to be able to...

Sean liked John Mac's post in the thread Trial Report Development and validation of a prognostic model for assessing long COVID risk following Omicron wave, Chen et al, 2024.

Full Title: Development and validation of a prognostic model for assessing long COVID risk following Omicron wave—a large...