Recent Activity
Activity stream for all registered members at Science for ME.
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Joan Crawford liked Mij's post in the thread : TV casting call for people living with ME/CFS.
I was able to run during the earlier years of M.E and continued to do so even when I experienced severe PEM and recovered after 3-4...
Jun 13, 2024 at 1:58 PM -
Joan Crawford liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
It'd be nice to have some!
Jun 13, 2024 at 1:57 PM -
Joan Crawford liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
THIS Yep - all of what @JemPD said. We've had the 'Woman with ME (or CFS) swimming around the Isle of Thanet' with copious...
Jun 13, 2024 at 1:57 PM -
ME/CFS Skeptic replied to the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Only was able to skim it briefly but it looks like a good blog that identified many of the same issues discussed here on the S4ME...
Jun 13, 2024 at 1:57 PM -
JohnTheJack liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I"d also be fascinated to know more about "the amazing advisory group of medical doctors and researchers who worked their butts off to...
Jun 13, 2024 at 1:57 PM
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Joan Crawford liked JemPD's post in the thread : TV casting call for people living with ME/CFS.
All of the above. I think they'll have no trouble at all finding someone. Someone who is either very mildly affected (eg somewhat...
Jun 13, 2024 at 1:57 PM -
Joan Crawford liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
The NICE guidance states exercise- physical activity should be overseen by ME/CFS specialist...
Jun 13, 2024 at 1:56 PM
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JohnTheJack liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I sent a very polite email earlier this week to Dr Cefai laying out my concerns with the study - that she was studying a self-selecting...
Jun 13, 2024 at 1:56 PM -
MrMagoo liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
Totally. If I had been taught pacing at an early stage I would probably still be working and worth millions. Instead of poor. I might...
Jun 13, 2024 at 1:53 PM -
JohnTheJack liked Amw66's post in the thread Esther Crawley.
All hail FND
Jun 13, 2024 at 1:53 PM -
JemPD liked alex3619's post in the thread : TV casting call for people living with ME/CFS.
Totally. If I had been taught pacing at an early stage I would probably still be working and worth millions. Instead of poor. I might...
Jun 13, 2024 at 1:53 PM -
Eleanor liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Here's the latest correspondence with Cochrane. CEO Catherine Spencer wrote to me yesterday and I replied copying in COPE and...
Jun 13, 2024 at 1:53 PM -
JemPD liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
That's a funny image. A big muscley personal trainer yelling things like "for this set, push yourself to do as few reps as possible! I...
Jun 13, 2024 at 1:53 PM -
JemPD liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
We need an anti-coach to train us not to do so much “Come on, keep going, keep lying down! Don’t look at the state of the place, do not...
Jun 13, 2024 at 1:53 PM
