Recent Activity
Activity stream for all registered members at Science for ME.
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wingate replied to the thread ME & Chronic Illness Podcast: Post-Exertional Mayonnaise.
I've only just gotten through the intro of this episode but when he jokingly introduced Oonagh as an "anti-recovery activist" I lol....
Jun 13, 2024 at 6:16 AM -
Eddie liked SNT Gatchaman's post in the thread Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al.
[ATTACH] Also:
Jun 13, 2024 at 6:05 AM
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Eddie liked SNT Gatchaman's post in the thread Semi-automated Segmentation and Quantification of Perivascular Spaces at 7 Tesla in COVID-19, 2022, Langan et al.
I won't make a separate thread, but this paper shows that enlarged perivascular spaces are more often associated with arteries, in the...
Jun 13, 2024 at 5:51 AM -
HolyScrod liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I agree, when you roll in the lack of calibrating for disability (which is in Treadway's instructions, despite his reply), and the news...
Jun 13, 2024 at 5:47 AM -
HolyScrod liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...
Jun 13, 2024 at 5:46 AM -
HolyScrod liked forestglip's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
The comparison is astounding: NIH chart: [ATTACH] Chart created from raw data (from blog): [ATTACH] And even if counting the little...
Jun 13, 2024 at 5:46 AM
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HolyScrod liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...
Jun 13, 2024 at 5:45 AM -
Peter Trewhitt liked SNT Gatchaman's post in the thread ME & Chronic Illness Podcast: Post-Exertional Mayonnaise.
Oonagh Cousins & the dangers of the Lightning Process
Jun 13, 2024 at 5:44 AM -
Peter Trewhitt liked forestglip's post in the thread Open Medicine Foundation (OMF).
"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...
Jun 13, 2024 at 5:43 AM -
Peter Trewhitt liked Jaybee00's post in the thread Nature: ‘It’s all gone’: CAR-T therapy forces autoimmune diseases into remission.
https://www.medpagetoday.com/meetingcoverage/eular/110610 CAR-T Treatment Continues to Astonish in Rheumatologic Diseases
Jun 13, 2024 at 5:42 AM -
Peter Trewhitt liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Have heard from Cochrane CEO and replied. Will post tomorrow
Jun 13, 2024 at 5:42 AM -
Peter Trewhitt liked forestglip's post in the thread READ FIRST: Welcome to the MEpedia subforum!.
Device is Pixel 7, which Wikipedia says is 2400 × 1080.
Jun 13, 2024 at 5:42 AM -
Peter Trewhitt liked daftasabrush's post in the thread READ FIRST: Welcome to the MEpedia subforum!.
The Slack channel is invite only, I think you email the main MEpedia account to request adding. They need your email address I think to...
Jun 13, 2024 at 5:42 AM -
Peter Trewhitt liked Sean's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I was at uni during the time when post-modernism was the Latest Big Thing. It was a disturbing lesson in how gullible and faddish the...
Jun 13, 2024 at 5:42 AM -
Peter Trewhitt liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I"d also be fascinated to know more about "the amazing advisory group of medical doctors and researchers who worked their butts off to...
Jun 13, 2024 at 5:41 AM
