Recent Activity
Activity stream for all registered members at Science for ME.
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Sean liked forestglip's post in the thread Open Medicine Foundation (OMF).
"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...
Jun 13, 2024 at 1:50 AM -
alex3619 replied to the thread : TV casting call for people living with ME/CFS.
Or ice skating for the over 100s in Costa Rica.
Jun 13, 2024 at 1:48 AM -
Sean liked Jaybee00's post in the thread Nature: ‘It’s all gone’: CAR-T therapy forces autoimmune diseases into remission.
https://www.medpagetoday.com/meetingcoverage/eular/110610 CAR-T Treatment Continues to Astonish in Rheumatologic Diseases
Jun 13, 2024 at 1:48 AM -
Sean liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Have heard from Cochrane CEO and replied. Will post tomorrow
Jun 13, 2024 at 1:47 AM -
Sean liked rvallee's post in the thread USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021, updated June 2024.
Pretty weak. I saw the CDC tweet about the NASEM report, which has loads of references to ME/CFS, PEM and the rest. Damn do they move...
Jun 13, 2024 at 1:47 AM -
alex3619 liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Dear Joan, I’m contacting you from Electric Robin, an award-winning UK-based creative production company. You can find out more about...
Jun 13, 2024 at 1:47 AM -
Sean liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I know what I was trying to think of, but couldn’t. Emotional Labour? Mental load? Mental load is usually described as the...
Jun 13, 2024 at 1:47 AM -
Michelle liked rvallee's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
They're writing a paper... about having done a study? Which is already published? Which they recognize was not statistically...
Jun 13, 2024 at 1:47 AM -
Sean liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...
Jun 13, 2024 at 1:46 AM -
Sean liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read...
Jun 13, 2024 at 1:46 AM -
Sean liked Dakota15's post in the thread News from the USA, United States of America.
(sharing in here too, but Mods you can delete if you prefer just in other thread) KQED: 'National Academies Pushes for New Definition...
Jun 13, 2024 at 1:46 AM -
alex3619 replied to the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..
I had occupational health assistance. It failed. Such help is critical after many health issues, but while we still do not have...
Jun 13, 2024 at 1:45 AM -
Sean liked Nightsong's post in the thread Esther Crawley.
I edited my post just about a minute before you replied, Trish, but I meant insofar as she's able to directly affect the lives of...
Jun 13, 2024 at 1:44 AM -
Sean liked Trish's post in the thread Esther Crawley.
Not necessarily. Lots of retired people use their time in retirement to take up voluntary activities related to their profession.For...
Jun 13, 2024 at 1:43 AM -
Sean liked Nightsong's post in the thread Esther Crawley.
Also if you retain your licence you also have to engage in the regular appraisals and 5-year revalidations that were introduced just...
Jun 13, 2024 at 1:43 AM
