Recent Activity
Activity stream for all registered members at Science for ME.
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bobbler liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Have heard from Cochrane CEO and replied. Will post tomorrow
Jun 13, 2024 at 10:22 AM -
John Mac replied to the thread Esther Crawley.
A very, very wide spectrum
Jun 13, 2024 at 10:21 AM -
Peter Trewhitt liked John Mac's post in the thread UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 (including PIP consultation).
Work Capability Assessments to December 2024 [ATTACH]...
Jun 13, 2024 at 10:21 AM
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FMMM1 replied to the thread Esther Crawley.
I gather, from what a neighbour has told me, that there's quite a bit of work involved in maintaining your registration - demonstrating...
Jun 13, 2024 at 10:20 AM -
Kitty liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I agree, when you roll in the lack of calibrating for disability (which is in Treadway's instructions, despite his reply), and the news...
Jun 13, 2024 at 10:19 AM -
Peter Trewhitt liked FMMM1's post in the thread Esther Crawley.
Yea - 1991 --- aged 24 (ish) would be DOB 1967 - 57ish. Of course some people enter medicine a bit later e.g. it was Jonathan's 2nd...
Jun 13, 2024 at 10:18 AM -
Kitty liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Yes! I'm glad that she has pulled up the usage of the following charts. ANd how they seemed to be presented as if they showed the data,...
Jun 13, 2024 at 10:18 AM
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Peter Trewhitt liked Dx Revision Watch's post in the thread Esther Crawley.
Indeed and her colleague at the Bath Paediatric Specialist Chronic Fatigue service , Dr Jan Cribb, is also a psychiatrist: From Dr...
Jun 13, 2024 at 10:18 AM -
Kitty liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the...
Jun 13, 2024 at 10:18 AM -
Kitty liked forestglip's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
The comparison is astounding: NIH chart: [ATTACH] Chart created from raw data (from blog): [ATTACH] And even if counting the little...
Jun 13, 2024 at 10:18 AM
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Peter Trewhitt liked Jonathan Edwards's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I may be have been naïve, but to begin with I gave everyone the benefit of the doubt. But every time I go through these three stages...
Jun 13, 2024 at 10:18 AM -
Wyva liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
That's a funny image. A big muscley personal trainer yelling things like "for this set, push yourself to do as few reps as possible! I...
Jun 13, 2024 at 10:18 AM -
Wyva liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
We need an anti-coach to train us not to do so much “Come on, keep going, keep lying down! Don’t look at the state of the place, do not...
Jun 13, 2024 at 10:17 AM -
Peter Trewhitt liked Trish's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I've been reading Jeanette Burmeister's analysis, not having managed to find the time to do any analysis myself. Huge thanks to Jeanette...
Jun 13, 2024 at 10:17 AM -
Wyva liked Sean's post in the thread : TV casting call for people living with ME/CFS.
I believe the correct term is 'bang stick'.
Jun 13, 2024 at 10:17 AM
