Recent Activity
Activity stream for all registered members at Science for ME.
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Peter Trewhitt liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
When I was mild I started jogging again. I also started cycling too. Never as far as I used to, never as regularly as I used to, it was...
Jun 12, 2024 at 10:00 PM -
Peter Trewhitt liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
I think you missed one in the sentence beginning "We’re making an exciting new sports series".
Jun 12, 2024 at 10:00 PM -
Peter Trewhitt liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
I blanked out the presenters mentioned. Janet is I think a producer or similar.
Jun 12, 2024 at 10:00 PM -
Peter Trewhitt liked forestglip's post in the thread : TV casting call for people living with ME/CFS.
Should you maybe respect her wish to not publicize the presenter? If you're trying to keep a productive dialogue with her, it won't help...
Jun 12, 2024 at 9:59 PM -
Peter Trewhitt liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 12, 2024 at 9:59 PM -
Peter Trewhitt liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...
Jun 12, 2024 at 9:59 PM -
Peter Trewhitt liked Tia's post in the thread : TV casting call for people living with ME/CFS.
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...
Jun 12, 2024 at 9:59 PM -
Peter Trewhitt liked Trish's post in the thread : TV casting call for people living with ME/CFS.
This sort of ignorance is one reason why I don't like ME/CFS being described as a disability. Better, I think, to describe it as a...
Jun 12, 2024 at 9:58 PM -
Peter Trewhitt liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
Is it worth getting in touch with the presenters too just offering more info and being gently enlightening. As a Paralympian or someone...
Jun 12, 2024 at 9:58 PM -
bobbler replied to the thread : TV casting call for people living with ME/CFS.
I find in this situation using the term with these people of ‘you are out of date and working based on old and harmful guidelines snd...
Jun 12, 2024 at 9:53 PM -
forestglip liked Nightsong's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
Problems with HADS have been discussed on S4ME before; I did notice, though, that they're using a different scale for children: This...
Jun 12, 2024 at 9:49 PM -
Trish replied to the thread Esther Crawley.
Nor necessarily. Lots of retired people use their time in retirement to take up voluntary activities related to their profession.For...
Jun 12, 2024 at 9:49 PM -
Lindberg liked mango's post in the thread Sweden: ME clinic and Masano Health digital rehab for ME/CFS.
Another great opinion piece! Fantastic effort, @MittEremltage :thumbup: Insändare: Stryk ME-mottagningen från listan på besparingar...
Jun 12, 2024 at 9:48 PM -
Trish liked Jonathan Edwards's post in the thread Esther Crawley.
If she qualified in 1991 should would be expected to be 58 but if for some reason she completed her medical training late, maybe having...
Jun 12, 2024 at 9:44 PM -
Lindberg liked Dakota15's post in the thread Webinar: USA: National Academy of Medicine: New Definition Proposed for Long COVID, June 11, 2024, 1 PM EDT.
KQED: 'National Academies Pushes for New Definition of Long COVID' 'Long COVID afflicts an estimated 17 million Americans. We’ll talk...
Jun 12, 2024 at 9:44 PM
