Recent Activity
Activity stream for all registered members at Science for ME.
-
MelbME liked SNT Gatchaman's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
@MelbME this is only a poster abstract, unreplicated, and I don't know what ME criteria was used, but allegedly 82% of patients had...
Jun 12, 2024 at 3:35 AM -
forestglip attached a file to the thread Modern environmental factors.
If it turns out risk of ME or some other chronic illness is increased by chemicals which stay in the body and continue to harm as long...
Jun 12, 2024 at 3:32 AM
-
Missense liked SNT Gatchaman's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
@MelbME this is only a poster abstract, unreplicated, and I don't know what ME criteria was used, but allegedly 82% of patients had...
Jun 12, 2024 at 3:21 AM -
Missense liked oldtimer's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
PEM pronounced as an acronym (rather than the initialised P-E-M) sounds silly to my ear. When I first heard it I thought it must be a...
Jun 12, 2024 at 3:20 AM -
Missense liked Kitty's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Me too! That's part of it, but it also feels exclusionary because most people won't know what it means—it even stumps me sometimes...
Jun 12, 2024 at 3:20 AM -
Missense liked JemPD's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
This is now getting really far off topic, sorry mods, but i wonder if one's accent affects it. For example for me to say the letters...
Jun 12, 2024 at 3:20 AM -
Missense liked Mij's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I'm not from the U.K but I always felt that PIP sounded too much like PEP (liveliness and energy).
Jun 12, 2024 at 3:20 AM -
Missense liked JemPD's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
eeewww me too! when people say pem as a word rather than using the 3 letters it gives me the creeps i have such an aversion to it i find...
Jun 12, 2024 at 3:19 AM -
Missense liked Sean's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Always said pem, as in pen, just swap the n for an m. Keeping it short and simple is what acronyms are for, I thought. I don't have...
Jun 12, 2024 at 3:19 AM -
Missense liked forestglip's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I thought the norm was P-E-M until I heard someone during the NIH research roadmap webinar say "pem", and I've grown to prefer it...
Jun 12, 2024 at 3:19 AM -
Missense liked MrMagoo's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
That’s how I say it in my head when I read it too pee eee emm
Jun 12, 2024 at 3:19 AM -
Missense liked Kitty's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
No, I say P-E-M, and most of the people I know do. That might be the reason I think it's the norm and 'pem' sounds really weird, though! :D
Jun 12, 2024 at 3:18 AM -
Missense liked DigitalDrifter's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
So I've been saying it wrong all these years? Do you literally sound out post-exertional malaise every time you read PEM?
Jun 12, 2024 at 3:18 AM -
Missense liked Kitty's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I think malaise does it reasonably well, and post-exertional malaise does it better because it's more specific. I wouldn't have picked...
Jun 12, 2024 at 3:18 AM -
Missense liked MrMagoo's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
“Flu-like symptoms” does it for me. And certainly, if I were to write using medical language like pharyngitis, lymphadenopathy,...
Jun 12, 2024 at 3:18 AM
