Recent Activity
Activity stream for all registered members at Science for ME.
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bobbler replied to the thread Esther Crawley.
Interesting that scanning the same document I found the following: I wonder how, given the suggestion is that the MEA PROMS will...
Jun 11, 2024 at 8:30 PM -
Evergreen liked Ash's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
On the tilt in space, I think even if it doesn’t go flat it’s very much better than a non tilt chair for back and neck comfort so I’d...
Jun 11, 2024 at 8:30 PM -
Evergreen replied to the thread Powered wheelchair that tilts for indoors and garden path UK.
I would only be able to try some from home. I would have a very limited ability to try things out - just don't have the energy to...
Jun 11, 2024 at 8:30 PM -
Hutan replied to the thread Adam Mastroianni - blogs on research methodology.
Click on the tag at the top left of the thread 'Mastroianni' for more content.
Jun 11, 2024 at 8:30 PM -
JellyBabyKid liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The answer to any Parliamentary Question is simple. It was a project involving people with ME and funded by the ME Association. What...
Jun 11, 2024 at 8:29 PM -
JellyBabyKid liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The government thingie, that got put on hold when the election was called. I'm so brain fogged I can't even think of a term to search...
Jun 11, 2024 at 8:28 PM -
JellyBabyKid liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Good idea—maybe we could ask for it to go into the action plan, or whatever it was called? It's not difficult to do, especially if a...
Jun 11, 2024 at 8:28 PM -
JellyBabyKid liked FMMM1's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I was wondering if post election we ask a parliamentary question re how these interventions are being evaluated; in particular are real...
Jun 11, 2024 at 8:28 PM -
JellyBabyKid liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.
And that's the end of that possible source of stigma as far as the authors are concerned - when actually power differences and the...
Jun 11, 2024 at 8:26 PM -
Trish liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.
What then do they think are the problems? Society's belief that objectively measurable disorders are more real and worthy than other...
Jun 11, 2024 at 8:25 PM -
JellyBabyKid liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.
If only they put the same effort applied to acronyms to examining the evidence for the views they hold. Someone has been paying multiple...
Jun 11, 2024 at 8:25 PM -
Evergreen replied to the thread Powered wheelchair that tilts for indoors and garden path UK.
Well a rep is going to come with the OT in a few weeks' time, and they'll be bringing 2 powerchairs apparently, just to start getting an...
Jun 11, 2024 at 8:25 PM -
JellyBabyKid liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.
1. Create the stigma 2. Categorise the stigma There's definitely a sense of hand-wringing from a number of these papers on FND stigma....
Jun 11, 2024 at 8:24 PM
