Recent Activity
Activity stream for all registered members at Science for ME.
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Lidia Thompson liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...
Jun 13, 2024 at 1:41 AM -
Sean liked Peter Trewhitt's post in the thread Esther Crawley.
@dave30th has posted on Prof Crawley’s retirement in his Trial by Error Series: Trial By Error: Professor Esther Crawley, Bristol...
Jun 13, 2024 at 1:38 AM -
Sean liked Kitty's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.
What about when the subject moves their hands back so as not to make contact? That would be my instinctive reaction! :laugh:
Jun 13, 2024 at 1:38 AM -
Sean liked Hutan's post in the thread News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary.
Thanks @Wyva, so we have a whole batch of papers on poorly conceived studies to look forward to. When no cognitive dysfunction shows...
Jun 13, 2024 at 1:38 AM -
Sean liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The times that I've used the services of private specialists, it hasn't been about managing the core features of ME. I've needed help...
Jun 13, 2024 at 1:37 AM -
Sean liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Hmmm. I know most of this community is of the opinion that the diagnoses such as MCAS and EDSh are not legitimate. But I’m wondering...
Jun 13, 2024 at 1:36 AM -
Sean liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Yeah but nobody knows what. And if you seek hard enough you will find all sorts of made up stuff. At some point everyone involved has to...
Jun 13, 2024 at 1:36 AM -
Michelle liked Medfeb's post in the thread National Academies: New Report Reviews Evidence on Long COVID Diagnosis, Risk, Symptoms, and Functional Impact for Patients 2024.
I haven't read the report but generally thought the panel members presenting got it. For instance, one acknowledged that doctors might...
Jun 13, 2024 at 1:36 AM -
Sean liked Mij's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Admitting they don't understand M.E or that they haven't figured it out yet is not the same as dismissing the patient. I can respect that.
Jun 13, 2024 at 1:36 AM -
Sean liked Solstice's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The guy that first diagnosed me told me there was nothing he could to help me. Which is devastating but also absolutely fair imo. I...
Jun 13, 2024 at 1:36 AM -
Sean liked Lou B Lou's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
'The only problem with that is that it is not fair to ask people to ask for help when nobody knows what would help. They just end up...
Jun 13, 2024 at 1:35 AM -
Sean liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
EDS is a group of monogenic genetic diseases, most of which we know the gene for and are easily tested for. There are 13 main types....
Jun 13, 2024 at 1:35 AM -
Sean liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I think that is fair. So I guess that my conclusion that there is an urgent need for some sort of consensus amongst the medical...
Jun 13, 2024 at 1:35 AM -
Michelle liked Yann04's post in the thread National Academies: New Report Reviews Evidence on Long COVID Diagnosis, Risk, Symptoms, and Functional Impact for Patients 2024.
I find it so weird how people who meet ME diagnostic criteria after a covid infection are said to have long covid and not ME/CFS?...
Jun 13, 2024 at 1:34 AM -
MrMagoo liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of...
Jun 13, 2024 at 1:34 AM
