Recent Activity
Activity stream for all registered members at Science for ME.
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Peter Trewhitt liked butter.'s post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Very interesting study, I thought I would mention that measures to increase volume (saline, desmo,fludro,..) worked well for me in the...
Jun 12, 2024 at 9:16 AM -
Trish liked SNT Gatchaman's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..
Vocational rehabilitation for Long Covid: a roadmap for recovery Parkin, A; Rayner, C; Mir, G; O'Connor, R J Academic Department of...
Jun 12, 2024 at 9:16 AM -
Peter Trewhitt liked Solstice's post in the thread News from Austria and Switzerland.
If we're pitching theories, I think it's just lord Chtulhu working in nefarious ways.
Jun 12, 2024 at 9:15 AM -
Solstice liked Dakota15's post in the thread News from the USA, United States of America.
Yeah, it's a mess. Also it's fairly common knowledge that Senator Marshall's young son is a Long COVID patient (I'm sure you remembered...
Jun 12, 2024 at 9:15 AM -
Solstice liked rvallee's post in the thread News from the USA, United States of America.
Whew. This is a mess. It mixes up far-right conspiracy theories centered around Fauci, from a perspective that it was an overreaction,...
Jun 12, 2024 at 9:15 AM -
Jonathan Edwards replied to the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
I absolutely agree with the first half of what is said. But it will be completely ignored because of the second half. We need to stick...
Jun 12, 2024 at 9:15 AM -
Solstice liked Dakota15's post in the thread News from the USA, United States of America.
New York Times: 'New Report Underscores the Seriousness of Long Covid’ by Pam Belluck 'The National Academies said the condition could...
Jun 12, 2024 at 9:13 AM -
Solstice liked Dakota15's post in the thread News from the USA, United States of America.
Tiny Matters podcast (47-minute episode), from the American Chemical Society: “Long COVID: What We’re Learning about Pathogens and...
Jun 12, 2024 at 9:13 AM -
butter. replied to the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Very interesting study, I thought I would mention that measures to increase volume (saline, desmo,fludro,..) worked well for me in the...
Jun 12, 2024 at 9:12 AM -
Wyva liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
I agree. My concern is that the reference to untested treatments will make it only too easy for health professionals to say to...
Jun 12, 2024 at 9:07 AM -
Trish liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I think that's rather different to annual reviews, which are by definition routine. They're not designed to manage a change in...
Jun 12, 2024 at 9:05 AM -
Solstice replied to the thread News from Austria and Switzerland.
If we're pitching theories, I think it's just lord Chtulhu working in nefarious ways.
Jun 12, 2024 at 9:05 AM -
EndME liked Trish's post in the thread : TV casting call for people living with ME/CFS.
This sort of ignorance is one reason why I don't like ME/CFS being described as a disability. Better, I think, to describe it as a...
Jun 12, 2024 at 9:04 AM
