Recent Activity
Activity stream for all registered members at Science for ME.
-
alktipping liked Simon M's post in the thread Concerns About The ME Association's Prevalence Figures For ME & Long Covid.
That seems very low relative to the size of the 'limited a lot' category, and reports of LC more generally. Do you have a link to the...
Jun 11, 2024 at 11:33 PM -
alktipping liked Trish's post in the thread #MEAction UK: Questions to Ask Prospective MPs About ME/CFS.
Discussion on this thread:...
Jun 11, 2024 at 11:32 PM -
alktipping liked MBailey's post in the thread #MEAction UK: Questions to Ask Prospective MPs About ME/CFS.
I'm sure there is a discussion I've not seen on s4me on what is considered a better number to use? Anything we claim, we need to be able...
Jun 11, 2024 at 11:32 PM -
alktipping liked Andy's post in the thread #MEAction UK: Questions to Ask Prospective MPs About ME/CFS.
Unfortunately I feel that providing a figure that misrepresents the likely scale is as unhelpful. Issues with the CDC survey from the...
Jun 11, 2024 at 11:31 PM -
alktipping liked Janna Moen PhD's post in the thread NIH study - where to start?.
I am actually working on a blog post for this purpose, but it's taking quite some time. I'm glad to have found this forum as the folks...
Jun 11, 2024 at 11:28 PM -
alktipping liked Wits_End's post in the thread NIH study - where to start?.
Welcome, then, Janna! Sounds as though you'll be a good person to have on board.
Jun 11, 2024 at 11:28 PM -
alktipping liked Hutan's post in the thread NIH study - where to start?.
One of the other biggest concerns @cassava7 was the small size of the cohorts. For most of the studies, the size is considerably...
Jun 11, 2024 at 11:28 PM -
alktipping liked Simon M's post in the thread NIH study - where to start?.
Hi, Janna, and welcome to the forum. Look forward to reading your blog.
Jun 11, 2024 at 11:27 PM -
Lindberg liked Frith's post in the thread A question about mitochondria.
Last week I had an online “Initial Appointment Group Session” with my local ME clinic, slightly behind schedule as I ‘celebrate’ 37...
Jun 11, 2024 at 11:27 PM -
alktipping liked Hutan's post in the thread NIH study - where to start?.
It's terrific to have you with us Janna, I too look forward to hearing more from you.
Jun 11, 2024 at 11:27 PM -
MrMagoo replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Maybe there should be an annual review PROMS
Jun 11, 2024 at 11:23 PM -
Lou B Lou liked Mij's post in the thread ME/CFS services in the United Kingdom.
I'm not sure where to post this for pwME in the U.K Some might not be aware of this code for housebound patients? Code 13CA [MEDIA]
Jun 11, 2024 at 11:23 PM -
bobbler liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Care and support plans...
Jun 11, 2024 at 11:21 PM
-
alktipping liked Yann04's post in the thread NIH study - where to start?.
@cassava7 I think this piece is quite good at summarising the potential problems with the study, while staying neutral in tone, and...
Jun 11, 2024 at 11:20 PM
