Recent Activity

Activity stream for all registered members at Science for ME.

  1. Peter Trewhitt liked MelbME's post in the thread Open Medicine Foundation (OMF).

    Yes this is a large scale project that we expect to take another 2-3 years to complete. The idea is to build an initial large dataset...

    Jun 13, 2024 at 12:19 PM
  2. forestglip liked Jonathan Edwards's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    I may be have been naïve, but to begin with I gave everyone the benefit of the doubt. But every time I go through these three stages...

    Jun 13, 2024 at 12:19 PM
  3. Peter Trewhitt liked MelbME's post in the thread Comparison of measures of functional capacity and the way the questions are worded to take into account ME/CFS limitations.

    I really like the FUNCAP. I think it's important to point out that they validated its use for a two week period. It is also really...

    Jun 13, 2024 at 12:19 PM
  4. Peter Trewhitt liked alex3619's post in the thread : TV casting call for people living with ME/CFS.

    Totally. If I had been taught pacing at an early stage I would probably still be working and worth millions. Instead of poor. I might...

    Jun 13, 2024 at 12:19 PM
  5. Peter Trewhitt liked Dolphin's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.

    I too couldn’t access files but video recording worked.

    Jun 13, 2024 at 12:18 PM
  6. forestglip liked Trish's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    I've been reading Jeanette Burmeister's analysis, not having managed to find the time to do any analysis myself. Huge thanks to Jeanette...

    Jun 13, 2024 at 12:18 PM
  7. Peter Trewhitt liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.

    Well that was useful (not) I tried to open one of the documents and got an access denied response.

    Jun 13, 2024 at 12:18 PM
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