Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked NelliePledge's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Normal good practice chairing of any meeting especially larger groups where people are remote would be to explain when questions will be...
Jun 13, 2024 at 12:16 PM -
forestglip liked MSEsperanza's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Thank you to everyone working on dissecting the study. In skimming-mode only and most is way beyond me anyway but stumbled across a...
Jun 13, 2024 at 12:16 PM -
Hutan liked Andy's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Perhaps it is meant to keep Tyson in line and stop her further abusing members of the patient community?
Jun 13, 2024 at 12:16 PM -
Hutan liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
And attribute that absolutely zero abuse to the disclaimer/warning? Seriously, of course no online seminar that invites audience...
Jun 13, 2024 at 12:15 PM -
Hutan liked Lou B Lou's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
"In rare cases where you disagree, feel free to comment, but please don’t be abusive. Any abusive language will not be tolerated, and...
Jun 13, 2024 at 12:15 PM -
LJord liked MelbME's post in the thread Comparison of measures of functional capacity and the way the questions are worded to take into account ME/CFS limitations.
I really like the FUNCAP. I think it's important to point out that they validated its use for a two week period. It is also really...
Jun 13, 2024 at 12:15 PM -
LJord liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yes this is a large scale project that we expect to take another 2-3 years to complete. The idea is to build an initial large dataset...
Jun 13, 2024 at 12:14 PM -
Hutan liked Dolphin's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
ME Research UK post on the 4 workshops: Research Workshops – attendance invitation...
Jun 13, 2024 at 12:13 PM -
Hutan liked Jonathan Edwards's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Clearly a 'trip' of the spellchecker.
Jun 13, 2024 at 12:13 PM -
Hutan liked Jonathan Edwards's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
It's a mixed bag. Caroline is very good at what she does but I am not sure that she has any particular experience with trials. The...
Jun 13, 2024 at 12:13 PM -
Hutan liked Andy's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
I would certainly agree that it is important to be able to measure how high you are after taking any drugs.
Jun 13, 2024 at 12:13 PM -
Hutan liked Andy's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
"Chair - Professor Harm van Marwijk, Professor in General Practice at Brighton and Sussex Medical School Speakers Sarah Gorst – COMET...
Jun 13, 2024 at 12:11 PM -
Hutan liked Jonathan Edwards's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
The real problem is that nobody has any clear idea what drugs to test, except naltrexone. Applications for funding for naltrexone trials...
Jun 13, 2024 at 12:10 PM
