Recent Activity
Activity stream for all registered members at Science for ME.
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MrMagoo liked Tia's post in the thread : TV casting call for people living with ME/CFS.
It's a bit like saying we're looking for a person with celiac disease to come on our programme about eating bread. There'll always be...
Jun 12, 2024 at 10:46 PM -
rvallee liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.
What then do they think are the problems? Society's belief that objectively measurable disorders are more real and worthy than other...
Jun 12, 2024 at 10:45 PM -
MrMagoo replied to the thread : TV casting call for people living with ME/CFS.
I am 100% there mouthing “where’s me danger pointer” and doing a trigger finger
Jun 12, 2024 at 10:45 PM -
Kitty liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read...
Jun 12, 2024 at 10:45 PM -
Kitty liked bobbler's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Does it in some way avoid the ‘correlation issue’ of what is causing what given disability existed before the task —> correlation with...
Jun 12, 2024 at 10:44 PM -
Kitty liked Dakota15's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Sharing this message I received today from an individual with HHS, if helpful to know for anyone still working on this here: "Our...
Jun 12, 2024 at 10:44 PM -
wingate liked Dakota15's post in the thread News from the USA, United States of America.
(sharing in here too, but Mods you can delete if you prefer just in other thread) KQED: 'National Academies Pushes for New Definition...
Jun 12, 2024 at 10:44 PM -
MrMagoo liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Inability to recall the word rifle. "Where's my long shooty thing?"
Jun 12, 2024 at 10:44 PM -
MrMagoo liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
And the cognitive ones – 'inability to remember where you left the rifle'.
Jun 12, 2024 at 10:44 PM -
MrMagoo liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
Ha Ha Ha!!!! Better clear the place first! Some pwme have serious visual/spatial impairments. And the CCC does mention as a...
Jun 12, 2024 at 10:44 PM
