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Activity stream for all registered members at Science for ME.

  1. alktipping liked Yann04's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..

    I could see this being said by a BPS person. Imagine: but Long Covid is not a psychological illness, and such explanations of physical...

    Jun 12, 2024 at 11:11 PM
  2. alktipping liked SNT Gatchaman's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..

    It could be a little more clear I guess: "but Long Covid is not a psychological illness, and such explanations of physical symptoms...

    Jun 12, 2024 at 11:10 PM
  3. alktipping liked rvallee's post in the thread Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al..

    I don't think there's evidence of that. Psychological suffering is associated with inflammation and immune system alterations, but there...

    Jun 12, 2024 at 11:10 PM
  4. alktipping liked Kitty's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    In addition to the ethical issues here, reports like this should always say very clearly that a proportion of pwLC (including children)...

    Jun 12, 2024 at 11:09 PM
  5. alktipping liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    Thanks, yes it is softened in a few ways, but I still think problematic.

    Jun 12, 2024 at 11:09 PM
  6. alktipping liked Nightsong's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    I've pulled a copy of the old article from my browser's cache. Here's the diff: That is a welcome change as many desperate pwLC might...

    Jun 12, 2024 at 11:09 PM
  7. alktipping liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    It looks to me as if someone has twigged to the potentially very serious issue of Dr Kane being seen to be treating children without...

    Jun 12, 2024 at 11:08 PM
  8. Colleen Steckel replied to the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...

    Jun 12, 2024 at 11:08 PM
  9. alktipping liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    Yes, it seems to have been amended for the better: Unfortunately, I don’t have a copy of the original article to compare so I’m...

    Jun 12, 2024 at 11:08 PM
  10. alktipping liked Nightsong's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    The article does a really good job of presenting how an ordinary family's life can be overturned by all of this, how intransigent...

    Jun 12, 2024 at 11:07 PM
  11. alktipping liked Eleanor's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    or maybe she's just getting better.

    Jun 12, 2024 at 11:06 PM
  12. alktipping liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...

    Jun 12, 2024 at 11:06 PM
  13. alktipping liked Jonathan Edwards's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    I agree. My concern is that the reference to untested treatments will make it only too easy for health professionals to say to...

    Jun 12, 2024 at 11:05 PM
  14. alktipping liked Trish's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.

    I agree there's cause for concern. Suggesting private treatment has something useful to offer for kids with Long Covid is wrong. Nobody...

    Jun 12, 2024 at 11:05 PM
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