Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked Sean's post in the thread Maeve Boothby O'Neill - articles about her life, death and inquest.
Any condition that includes in its criteria a 50% or more reduction in activity capacity is already bad even for 'mild' cases.
Jun 12, 2024 at 10:54 AM -
Hutan liked DokaGirl's post in the thread Maeve Boothby O'Neill - articles about her life, death and inquest.
Thank you again @dave30th for your follow-up article. It is desperately and horrifyingly frustrating to read of these situations....
Jun 12, 2024 at 10:54 AM -
Evergreen replied to the thread Powered wheelchair that tilts for indoors and garden path UK.
Yes! She mentioned a website the rep uses and I found that brand, so I'm pretty sure that will be available to me. I had to print out...
Jun 12, 2024 at 10:51 AM -
Kitty liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If you wanted to push it and get really proactive then it could be used by better GPs to signpost help and when to think of it. The...
Jun 12, 2024 at 10:47 AM -
Trish liked Amw66's post in the thread Poor sleep quality may trigger cognitive deficits after recovery from COVID-19, 2024, Carnes-Vendrell et al..
I would have thought that this holds for many conditions , if not generally. When my sleep is affected my cognitive abilities tank ( and...
Jun 12, 2024 at 10:47 AM -
Kitty liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yep. And also if they took the opportunity to have this bit in then it might mean those who have difficult people at home at least have...
Jun 12, 2024 at 10:47 AM -
Trish liked Tia's post in the thread : TV casting call for people living with ME/CFS.
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...
Jun 12, 2024 at 10:46 AM -
Kitty liked Sean's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
There was a 2.5 year long-term follow-up paper. Some of the control group did cross-over and try CBT/GET after the trial ended. But...
Jun 12, 2024 at 10:45 AM -
Kitty liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
To be honest, having a chat with a professional might just be what you need. I knew I was in trouble for a few years, but work,...
Jun 12, 2024 at 10:45 AM -
Kitty liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
:) I love it then!:) apologies for being slow there
Jun 12, 2024 at 10:45 AM -
Evergreen liked Ash's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Sunrise medical has them available on the quickie 300 M, which is a relatively small powerchair with a tight turning circle for indoor...
Jun 12, 2024 at 10:45 AM -
Kitty liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Nope, my asthma yearly review specifically includes a plan, and written so you take it away, for when you have an asthma attack. And the...
Jun 12, 2024 at 10:45 AM -
Kitty liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I was being somewhat facetious, they wouldn’t care for reported outcomes 3 years after last being seen in the clinic. The PROMS are to...
Jun 12, 2024 at 10:44 AM
