Recent Activity
Activity stream for all registered members at Science for ME.
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Turtle liked Trish's post in the thread : TV casting call for people living with ME/CFS.
How bizarre. Can you make any more of what the email said public?
Jun 12, 2024 at 4:45 AM -
Turtle liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Hello, Has anyone else received email regarding "TV casting call for people living with ME/CFS" ? To do with running and jogging and...
Jun 12, 2024 at 4:45 AM -
Sean liked Dakota15's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Sharing this message I received today from an individual with HHS, if helpful to know for anyone still working on this here: "Our...
Jun 12, 2024 at 4:45 AM -
cfsandmore liked Dakota15's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Sharing this message I received today from an individual with HHS, if helpful to know for anyone still working on this here: "Our...
Jun 12, 2024 at 4:33 AM -
bobbler liked RedFox's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Few to none of them have severe ME because they couldn't participate in whatever research we're doing. Almost all of them have...
Jun 12, 2024 at 4:23 AM -
bobbler liked NelliePledge's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Anyone with less severe ME will be trying to return to work in their existing job starting on reduced hours and many will not be able to...
Jun 12, 2024 at 4:21 AM -
SNT Gatchaman liked MelbME's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Yes this is very much in the space we are looking. Urine output, urea cycle (nitrogen metabolism), hormone production, blood flow,...
Jun 12, 2024 at 4:17 AM -
bobbler liked MrMagoo's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I do wonder if mine weren’t whipped out (as was usual back then) because they weren’t “really” getting tonsillitis. As in, any sore...
Jun 12, 2024 at 4:10 AM -
forestglip liked MelbME's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Yes this is very much in the space we are looking. Urine output, urea cycle (nitrogen metabolism), hormone production, blood flow,...
Jun 12, 2024 at 3:58 AM -
Joan Crawford liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
But exercise is good! Just because you can’t do it, or it makes you incredibly unwell isn’t a reason to slack off! I so wish I was a...
Jun 12, 2024 at 3:57 AM -
Joan Crawford liked csinclair02's post in the thread : TV casting call for people living with ME/CFS.
Runners? What the hell. Even when my condition was very mild, I couldn't run.
Jun 12, 2024 at 3:57 AM -
Joan Crawford liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Blimey, they're clueless, aren't they? I'd question the professionalism of a company that can't even be bothered to read a few...
Jun 12, 2024 at 3:57 AM -
horton6 liked ME/CFS Skeptic's post in the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
I think that would be the correct way to do this experiment. I believe the authors' significance testing is somewhat misleading as it...
Jun 12, 2024 at 3:49 AM -
MelbME replied to the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Yes this is very much in the space we are looking. Urine output, urea cycle (nitrogen metabolism), hormone production, blood flow,...
Jun 12, 2024 at 3:49 AM -
bobbler liked JohnTheJack's post in the thread What we're not being told about ME - UnHerd (Tom Chivers).
It is good, I think. He is very sympathetic. He also has a very good reputation as a science writer for coverage of crap studies. It's...
Jun 12, 2024 at 3:44 AM
