Recent Activity
Activity stream for all registered members at Science for ME.
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rvallee liked forestglip's post in the thread GPT for ME/CFS Questions.
Done. Difference between regular ChatGPT and ME/GPT: "is me/cfs psychogenic?"
Jun 3, 2024 at 12:41 AM -
MrMagoo liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
In a sense maybe, but what we normally call research is investigation that reliably transfers to a general situation. And when it comes...
Jun 3, 2024 at 12:40 AM -
bobbler replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Ps the PROM also isn’t just 20th century but only used to measure ‘delivery’ and not impact or whether the treatment works in areas that...
Jun 3, 2024 at 12:38 AM -
MrMagoo liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
The issue no one talks of is coercion and all of the forms that come under this (social pressure , culture, all these links to schools,...
Jun 3, 2024 at 12:36 AM -
MrMagoo liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
To me, there might also be an opportunity to work on something sooner rather than later, iron out as many of the creases as we can, and...
Jun 3, 2024 at 12:35 AM -
MrMagoo liked JemPD's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I am right that Keith is a patient arent I? just suddenly had a moment of doubt but dont i remember that Wessely etc discounted his...
Jun 3, 2024 at 12:35 AM -
MrMagoo liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
They surely will have seen our letters and are free to read this thread.
Jun 3, 2024 at 12:35 AM -
MrMagoo liked JellyBabyKid's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Oh. Oh heck. Stupid question, but has the S4ME letter been sent to Keith and Russell as well as the trustees..? Keith seems to be...
Jun 3, 2024 at 12:35 AM -
MrMagoo liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Every pwME's efforts at pacing is a research exercise carried out by the pwME as we navigate every day's activity and rest. All I'm...
Jun 3, 2024 at 12:35 AM -
horton6 liked MelbME's post in the thread Open Medicine Foundation (OMF).
If it is effective then it could be doing many things. We will have a better understanding after the study based on the design. If we...
Jun 3, 2024 at 12:35 AM -
MrMagoo liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes I agree absolutely on this, but it need to be done as a research exercise to see what predicts what.
Jun 3, 2024 at 12:35 AM -
MrMagoo liked JemPD's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I completely agree, but the challenge is that Sarah Tyson... IS a patient. And the mother of another patient. Russell Fleming is a...
Jun 3, 2024 at 12:35 AM -
MrMagoo liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I think I would have found it very helpful when I was newly learning to cope with symptoms and crashes and still working part time. It...
Jun 3, 2024 at 12:35 AM -
MrMagoo liked JellyBabyKid's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
This really gets to me. Paternalism at its worst. Michael J. Fox says “Parkinson's patients are the experts on what we have. We have a...
Jun 3, 2024 at 12:34 AM -
bobbler liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes Adrian some of us have flagged up that use of trackers should be considered and there are symptom tracking apps like visible (which...
Jun 3, 2024 at 12:34 AM
