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JellyBabyKid liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

The government thingie, that got put on hold when the election was called. I'm so brain fogged I can't even think of a term to search...

JellyBabyKid liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Good idea—maybe we could ask for it to go into the action plan, or whatever it was called? It's not difficult to do, especially if a...

JellyBabyKid liked FMMM1's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

I was wondering if post election we ask a parliamentary question re how these interventions are being evaluated; in particular are real...

JellyBabyKid liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.

And that's the end of that possible source of stigma as far as the authors are concerned - when actually power differences and the...

Trish liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.

What then do they think are the problems? Society's belief that objectively measurable disorders are more real and worthy than other...

JellyBabyKid liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.

If only they put the same effort applied to acronyms to examining the evidence for the views they hold. Someone has been paying multiple...

Evergreen replied to the thread Powered wheelchair that tilts for indoors and garden path UK.

Well a rep is going to come with the OT in a few weeks' time, and they'll be bringing 2 powerchairs apparently, just to start getting an...

JellyBabyKid liked Hutan's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.

1. Create the stigma 2. Categorise the stigma There's definitely a sense of hand-wringing from a number of these papers on FND stigma....

Joan Crawford posted a new thread.

: TV casting call for people living with ME/CFS

Hello, Has anyone else received email regarding "TV casting call for people living with ME/CFS" ? To do with running and jogging and...

Forum: General ME/CFS news

Trish liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.

That's something to look forward to.

Trish liked Evergreen's post in the thread Powered wheelchair that tilts for indoors and garden path UK.

It is exciting! Bit daunting too. We won't have funding but Mr Evergreen has a job and we will pay for what I need, within reason....

Lou B Lou liked Hoopoe's post in the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.

Shame! The functional disorders paradigm exists to oppress people with difficult health problems because it's designed to prevent them...

Hutan liked Eleanor's post in the thread Adam Mastroianni - blogs on research methodology.

Unserious Science The first section of this article by Adam Mastroianni made me think of quite a few studies that show up in the...

Trish liked Ash's post in the thread Powered wheelchair that tilts for indoors and garden path UK.

How exciting @Evergreen! Do you know what your budget will be or are you still considering that? Will you be purchasing it privately? I...