Recent Activity
Activity stream for all registered members at Science for ME.
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NelliePledge liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...
Jun 12, 2024 at 3:56 PM -
EndME liked Arisoned's post in the thread : TV casting call for people living with ME/CFS.
I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance”...
Jun 12, 2024 at 3:54 PM -
EndME liked Eleanor's post in the thread : TV casting call for people living with ME/CFS.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you...
Jun 12, 2024 at 3:53 PM -
EndME liked Tia's post in the thread : TV casting call for people living with ME/CFS.
My worry is that they will find someone who says they have ME and can still go for a short run and that will be incredibly dangerous as...
Jun 12, 2024 at 3:53 PM -
Wyva liked Robert 1973's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
There is also this quote: “Patients should be getting ongoing support and rehab, says Kane.” It’s good to read a sympathetic article...
Jun 12, 2024 at 3:50 PM -
Wyva liked Eleanor's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
or maybe she's just getting better.
Jun 12, 2024 at 3:50 PM -
Wyva liked Solstice's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Also, if they don't want us shopping for help, then get us the help we need through the proper channels.
Jun 12, 2024 at 3:49 PM -
Wyva liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...
Jun 12, 2024 at 3:49 PM -
Kitty liked DMissa's post in the thread In vitro B cell experiments explore the role of CD24, CD38 and energy metabolism in ME/CFS, 2023, Armstrong et al.
ay, there’s the rub
Jun 12, 2024 at 3:49 PM -
Kitty liked MelbME's post in the thread In vitro B cell experiments explore the role of CD24, CD38 and energy metabolism in ME/CFS, 2023, Armstrong et al.
Thank you. I agree with you on the role of B cells in the disease. I'm more interested in their unusual behaviour, which may be due to...
Jun 12, 2024 at 3:49 PM -
Wyva liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I suspect the majority of patients will just assume that a private specialist will be better informed, more qualified and less time-poor...
Jun 12, 2024 at 3:48 PM
