Recent Activity
Activity stream for all registered members at Science for ME.
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Turtle liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...
Jun 12, 2024 at 7:50 AM -
JemPD liked Amw66's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
Significant thread on X from Dr Claire Taylor [MEDIA] If someone is bedbound with #longcovid & hospitalised, withholding urine...
Jun 12, 2024 at 7:38 AM -
Amw66 liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
A particularly nasty and gutless form of bigotry, that is getting very close to hate crimes at times. Sometimes even crossing that line,...
Jun 12, 2024 at 7:34 AM -
Amw66 liked Sean's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
There was a 2.5 year long-term follow-up paper. Some of the control group did cross-over and try CBT/GET after the trial ended. But...
Jun 12, 2024 at 7:31 AM -
Amw66 liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
My GP practice does both my reviews, even though I'm also reviewed by the rheumatology team. I think it's quite normal for primary care...
Jun 12, 2024 at 7:29 AM -
Amw66 liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Most people with a 'proper' chronic illness have an annual review, don't they? I have them for two different conditions, neither of...
Jun 12, 2024 at 7:28 AM -
Peter Trewhitt liked MelbME's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Yes this is very much in the space we are looking. Urine output, urea cycle (nitrogen metabolism), hormone production, blood flow,...
Jun 12, 2024 at 7:20 AM -
Peter Trewhitt liked SNT Gatchaman's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
@MelbME this is only a poster abstract, unreplicated, and I don't know what ME criteria was used, but allegedly 82% of patients had...
Jun 12, 2024 at 7:20 AM -
Peter Trewhitt liked oldtimer's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
PEM pronounced as an acronym (rather than the initialised P-E-M) sounds silly to my ear. When I first heard it I thought it must be a...
Jun 12, 2024 at 7:20 AM -
Deanne NZ liked SNT Gatchaman's post in the thread Childhood, interrupted: 12-year-old Toby’s life with long Covid.
Guardian: Childhood, interrupted: 12-year-old Toby’s life with long Covid More than 110,000 children in England and Scotland are still...
Jun 12, 2024 at 7:19 AM -
Peter Trewhitt liked Amw66's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
Significant thread on X from Dr Claire Taylor [MEDIA] If someone is bedbound with #longcovid & hospitalised, withholding urine...
Jun 12, 2024 at 7:18 AM -
Peter Trewhitt liked Sean's post in the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.
"An etude is a short, tricky tune that a musician plays mainly for practice or to demonstrate skill."
Jun 12, 2024 at 7:18 AM -
Peter Trewhitt liked SNT Gatchaman's post in the thread ‘I could bench-press 100kg. Now, I can’t walk’: Lucy’s life with long Covid.
Another in the series — Childhood, interrupted: 12-year-old Toby’s life with long Covid
Jun 12, 2024 at 7:18 AM -
Peter Trewhitt liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
A particularly nasty and gutless form of bigotry, that is getting very close to hate crimes at times. Sometimes even crossing that line,...
Jun 12, 2024 at 7:17 AM -
Peter Trewhitt liked forestglip's post in the thread Modern environmental factors.
If it turns out risk of ME or some other chronic illness is increased by chemicals which circulate in the blood and continue to harm as...
Jun 12, 2024 at 7:17 AM
