Recent Activity

Activity stream for all registered members at Science for ME.

  1. MrMagoo liked FMMM1's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    Sounds like a good idea. I attend these meetings -...

    Jun 11, 2024 at 9:07 PM
  2. SNT Gatchaman liked forestglip's post in the thread NIH study - where to start?.

    Yeah, looking at the actual study, I think this is the extent of testing performed one or more days post-CPET: And no meaningful...

    Jun 11, 2024 at 9:05 PM
  3. SNT Gatchaman liked poetinsf's post in the thread NIH study - where to start?.

    If I recall correctly, the 1-day CPET was used as a proof that the subjects were able to exert as well as the controls. PEM was...

    Jun 11, 2024 at 9:05 PM
  4. SNT Gatchaman liked Yann04's post in the thread NIH study - where to start?.

    PEM is mentioned 3 times in the study, as opposed to 26 times for “effort preference”. There no mention of PEM anywhere in their...

    Jun 11, 2024 at 9:04 PM
  5. Hutan liked Trish's post in the thread : TV casting call for people living with ME/CFS.

    How bizarre. Can you make any more of what the email said public?

    Jun 11, 2024 at 9:03 PM
  6. LJord liked rvallee's post in the thread BMJ - Not "all in the mind".

    Heeeh... not true. Not entirely. It's only true because psychosomatic medicine is not formally a specialty of its own, but for decades...

    Jun 11, 2024 at 9:03 PM
  7. Hutan liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.

    Hello, Has anyone else received email regarding "TV casting call for people living with ME/CFS" ? To do with running and jogging and...

    Jun 11, 2024 at 9:03 PM
  8. bobbler liked Trish's post in the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.

    Does this fill you with despair? The whole thing seems to be based on the premise that all so called functional symptoms are...

    Jun 11, 2024 at 9:03 PM
  9. bobbler liked Hoopoe's post in the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.

    Yes it fills me with despair. Just look at this immensely stupid circular logic here: By definition, unexplained persistent symptoms...

    Jun 11, 2024 at 9:03 PM
  10. SNT Gatchaman liked rvallee's post in the thread NIH study - where to start?.

    Very damning when presented all side-by-side. This really was mainly a biopsychosocial paper, having chosen to make the irrelevant...

    Jun 11, 2024 at 9:02 PM
  11. bobbler liked Hoopoe's post in the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.

    Also I'm horrified by what treatments that manipulate the perception of symptoms will do to fragile patients. Getting a person to deny...

    Jun 11, 2024 at 9:02 PM
  12. Hutan liked Trish's post in the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.

    On their website there's a short series of podcasts which the students on the project made on each of the six monthly occasions when...

    Jun 11, 2024 at 9:02 PM
  13. bobbler replied to the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.

    well that is flying high on buzzword bingo! 'in order to educate a new generation of interdisciplinary creative early stage...

    Jun 11, 2024 at 9:02 PM
  14. Hutan liked Trish's post in the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.

    How do you validate predictive value of symptom based disease criteria when the disease is only defined by sets of symptoms? Inevitably...

    Jun 11, 2024 at 9:01 PM
  15. Hutan liked Hoopoe's post in the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.

    Also I'm horrified by what treatments that manipulate the perception of symptoms will do to fragile patients. Getting a person to deny...

    Jun 11, 2024 at 9:01 PM
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