Recent Activity

Peter Trewhitt liked Eleanor's post in the thread Sound sensitivity.

(Not really sure where to post this, sorry if it's off topic) I was half-listening to the BBC 6 Music breakfast show as usual today....

Kitty liked bobbler's post in the thread : TV casting call for people living with ME/CFS.

Yes. I read it as maybe they had a template and someone got tasked with listing non/non-visible disabilities and because of the olde...

Kitty liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.

But exercise is good! Just because you can’t do it, or it makes you incredibly unwell isn’t a reason to slack off! I so wish I was a...

Kitty liked csinclair02's post in the thread : TV casting call for people living with ME/CFS.

Runners? What the hell. Even when my condition was very mild, I couldn't run.

jonathan_h liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.

I suspect the majority of patients will just assume that a private specialist will be better informed, more qualified and less time-poor...

ME/CFS Skeptic replied to the thread Rehabilitation Interventions for Physical Capacity and Quality of Life in Adults With Post-COVID-19 Condition, 2023, Pouliopoulou et al..

Don't think this review from last year has been posted yet on S4ME. I noticed that it was used as a source in the NASEM report on Long...

ME/CFS Skeptic posted a new thread.

Rehabilitation Interventions for Physical Capacity and Quality of Life in Adults With Post-COVID-19 Condition, 2023, Pouliopoulou et al.

Abstract Importance: Current rehabilitation guidelines for patients with post-COVID-19 condition (PCC) are primarily based on expert...

Forum: Long Covid research

JellyBabyKid liked Braganca's post in the thread Sound sensitivity.

Hi Wyva, I’ve had light and sound sensitivity which started year 2 of my illness. It’s much worse for sharp, loud or high pitched voices...

rvallee liked Sean's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.

Free-text analysis revealed stress and trauma as the most common causal attributions, Was that before or after they had those casual...

rvallee replied to the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.

But, they don't have that. An "understandable illness model" is just nonsense, Scientology's "ghosts of dead aliens" is an...

JellyBabyKid liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.

I suspect the majority of patients will just assume that a private specialist will be better informed, more qualified and less time-poor...

rvallee liked NelliePledge's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.

Tripe

JellyBabyKid liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

I wouldn’t really expect a review to ask about work, but I would have expected a review of my ME to end up with me talking about work as...

JellyBabyKid liked Sean's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.

Free-text analysis revealed stress and trauma as the most common causal attributions, Was that before or after they had those casual...

Solstice liked Trish's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.

If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS,...