Recent Activity
Activity stream for all registered members at Science for ME.
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Trish liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I think that's rather different to annual reviews, which are by definition routine. They're not designed to manage a change in...
Jun 12, 2024 at 9:05 AM -
Solstice replied to the thread News from Austria and Switzerland.
If we're pitching theories, I think it's just lord Chtulhu working in nefarious ways.
Jun 12, 2024 at 9:05 AM -
EndME liked Trish's post in the thread : TV casting call for people living with ME/CFS.
This sort of ignorance is one reason why I don't like ME/CFS being described as a disability. Better, I think, to describe it as a...
Jun 12, 2024 at 9:04 AM -
EndME liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
Is it worth getting in touch with the presenter Richsrd Whitehead too just offering more info and being gently enlightening. He’s a...
Jun 12, 2024 at 9:04 AM -
EndME liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Thanks Joan. Very good reply.
Jun 12, 2024 at 9:04 AM -
EndME liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Dear Joan, I’m contacting you from Electric Robin, an award-winning UK-based creative production company. You can find out more about...
Jun 12, 2024 at 9:04 AM -
Trish liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes, I was thinking it could be done by a practice nurse, like the diabetes, asthma etc
Jun 12, 2024 at 9:03 AM -
Trish liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
My GP practice does both my reviews, even though I'm also reviewed by the rheumatology team. I think it's quite normal for primary care...
Jun 12, 2024 at 9:03 AM -
Solstice liked Yann04's post in the thread News from Austria and Switzerland.
Switzerland has rejected by around 75% the far-right referendum seeking to ban vaccine mandates and ban anti-covid measures in the...
Jun 12, 2024 at 9:03 AM
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Solstice liked NelliePledge's post in the thread News from Austria and Switzerland.
Presumably the article is part of a push back because there are positive things happening - usual story
Jun 12, 2024 at 9:03 AM -
Solstice liked rvallee's post in the thread News from Austria and Switzerland.
It's also especially ridiculous to have this "no medication available, no disease" rationale. It's so obviously wrong, lots of diseases...
Jun 12, 2024 at 9:03 AM -
Solstice liked Peter Trewhitt's post in the thread News from Australia.
Were doctors not prepared, or were they rather primed to ignore the symptoms of post viral conditions after decades of denial and...
Jun 12, 2024 at 9:03 AM -
EndME liked Trish's post in the thread : TV casting call for people living with ME/CFS.
How bizarre. Can you make any more of what the email said public?
Jun 12, 2024 at 9:03 AM -
EndME liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Hello, Has anyone else received email regarding "TV casting call for people living with ME/CFS" ? To do with running and jogging and...
Jun 12, 2024 at 9:02 AM -
Solstice liked Sean's post in the thread News from Australia.
a completely new disease Yeah, nah.
Jun 12, 2024 at 9:02 AM
