Recent Activity
Activity stream for all registered members at Science for ME.
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Kitty liked Lou B Lou's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I'd say predictably those comments have fallen on deaf ears. Nothing has moved on from 'the therapist knows best' and 'the rehab...
Jun 2, 2024 at 8:46 PM -
Kitty liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes Adrian some of us have flagged up that use of trackers should be considered and there are symptom tracking apps like visible (which...
Jun 2, 2024 at 8:45 PM -
Kitty liked Adrian's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I've not been following this debate but it occurs to me that developing a new PROM could be the wrong approach. A PROM is basically a...
Jun 2, 2024 at 8:45 PM -
SNT Gatchaman liked MelbME's post in the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
The hot plate test shows a difference between Long COVID and acute COVID. Heat intolerance is a sign of dysautonomia. Perhaps anti-M3....
Jun 2, 2024 at 8:45 PM -
NelliePledge liked JemPD's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I completely agree, but the challenge is that Sarah Tyson... IS a patient. And the mother of another patient. Russell Fleming is a...
Jun 2, 2024 at 8:45 PM -
Kitty liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Oh they reiterated that they had a duty to deliver the information “to everyone” and this was the best way to do it. In fact they...
Jun 2, 2024 at 8:45 PM -
Kitty liked Trish's post in the thread GPT for ME/CFS Questions.
I think MEPedia is fine for historical information, but all the sciencey bits should be removed if no one is updating them.
Jun 2, 2024 at 8:44 PM -
Kitty liked Adrian's post in the thread GPT for ME/CFS Questions.
The way things work what you do is take a foundation model (something like GPT or LLama3 works well and is open source) and you can fine...
Jun 2, 2024 at 8:44 PM -
NelliePledge liked Adrian's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
My point though is more that the use of trackers. AI really enables very different interfaces and ways to interact so its not just say...
Jun 2, 2024 at 8:44 PM -
JellyBabyKid replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Oh. Oh heck. Stupid question, but has the S4ME letter been sent to Keith and Russell as well as the trustees..? Keith seems to be...
Jun 2, 2024 at 8:42 PM -
FMMM1 liked Adrian's post in the thread A question about mitochondria.
No and perhaps that means I'm talking rubbish - I thought I had heard people talking about the mitrocondria not performing correctly but...
Jun 2, 2024 at 8:36 PM -
FMMM1 liked Adrian's post in the thread A question about mitochondria.
I thought the idea that some were talking about was that its not the mitrocondria that are bad but the signalling to them so they are...
Jun 2, 2024 at 8:36 PM -
JellyBabyKid liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Every pwME's efforts at pacing is a research exercise carried out by the pwME as we navigate every day's activity and rest. All I'm...
Jun 2, 2024 at 8:36 PM
