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Recent Activity

Activity stream for all registered members at Science for ME.

  1. livinglighter liked SNT Gatchaman's post in the thread Review Attenuating Post-exertional Malaise in [ME/CFS] and Long-COVID: Is Blood Lactate Monitoring the Answer? 2024 Faghy et al.

    I did the same lactate monitoring, but also couldn't get a meaningful signal within the limitations of my exertion at the time....

    Apr 27, 2024 at 4:04 AM

  2. Sean replied to the thread The Canary: The two leading UK ME/CFS charities are linked to an organisation fomenting the psychologisation of the illness, 2024, Hannah Sharland.

    And has been for decades.

    Apr 27, 2024 at 3:48 AM

  3. Sean replied to the thread Dry eyes, laryngopharyngeal reflux, pepsin.

    Forgot to mention that during the day I use small sips of olive oil and gargle it to keep the mouth from drying out. Very effective,...

    Apr 27, 2024 at 3:47 AM

  4. RedFox liked Dakota15's post in the thread News from the USA, United States of America.

    Just sharing from Isabella Cueto this week in STAT News, with appearances from Dysautonomia International & RTHM. 4/23/24, STAT News:...

    Apr 27, 2024 at 3:36 AM

  5. RedFox liked rvallee's post in the thread News from the USA, United States of America.

    And if I can put some perspective on the whole LC vs ME/CFS split, on the Long Covid sub-reddit, it used to be a constant controversy...

    Apr 27, 2024 at 3:35 AM

  6. Maat liked Hutan's post in the thread How stigma unfolds for patients with Functional Neurological Disorder 2024 McLoughlin, Carson, Stone et al.

    Wow, first harm people by suggesting they have a health condition that can be fixed by thinking and behaving more normally, and then get...

    Apr 27, 2024 at 3:27 AM

  7. Maat liked rvallee's post in the thread How stigma unfolds for patients with Functional Neurological Disorder 2024 McLoughlin, Carson, Stone et al.

    Good grief the patients' comments, it's heart-wrenching. They hear all of this and still can't find anything wrong with what they're...

    Apr 27, 2024 at 3:25 AM

  8. alex3619 liked poetinsf's post in the thread Personal experience of using cumin to treat PEM.

    After walking up and down the mountains in 10-day 1500-mile trip, I was struggling again at home. I figured it was a good opportunity to...

    Apr 27, 2024 at 2:59 AM

  9. Lou B Lou liked Gradzy's post in the thread How stigma unfolds for patients with Functional Neurological Disorder 2024 McLoughlin, Carson, Stone et al.

    As someone repeatedly misdiagnosed with FND, and having been hostile to the diagnosis (with good reason), i find the comments from FND...

    Apr 27, 2024 at 2:56 AM

  10. Lou B Lou liked rvallee's post in the thread How stigma unfolds for patients with Functional Neurological Disorder 2024 McLoughlin, Carson, Stone et al.

    Good grief the patients' comments, it's heart-wrenching. They hear all of this and still can't find anything wrong with what they're...

    Apr 27, 2024 at 2:56 AM

  11. NelliePledge liked Gradzy's post in the thread How stigma unfolds for patients with Functional Neurological Disorder 2024 McLoughlin, Carson, Stone et al.

    As someone repeatedly misdiagnosed with FND, and having been hostile to the diagnosis (with good reason), i find the comments from FND...

    Apr 27, 2024 at 2:41 AM

  12. Sean liked Turtle's post in the thread Transcription Profile Analysis of Vastus Lateralis Muscle from Patients with Chronic Fatigue Syndrome, 2009, Pietrangelo et al..

    Low AT, no Krebscycle on exertion, lipids problematic, greater use of amino-acids lead to an environment better suited for fast muscles?

    Apr 27, 2024 at 2:35 AM

  13. Sean liked Turtle's post in the thread Transcription Profile Analysis of Vastus Lateralis Muscle from Patients with Chronic Fatigue Syndrome, 2009, Pietrangelo et al..

    In Muscle abnormalities worsen after post-exertional malaise in long COVID (2024, Nature Communications) — Appelmans.. Wüst mention...

    Apr 27, 2024 at 2:35 AM

  14. Sean liked Binkie4's post in the thread UK Parliament: Westminster Hall debate on ME/CFS, Wednesday 1st May 2024, 16.30 - 17.30.

    This is welcome news, to have an opportunity to ask the government about care for the severely ill patients if Sir Sajid or another MP...

    Apr 27, 2024 at 2:35 AM
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