Mod note: This thread was previously specifically for the UK Attitudes and Education Working Group, one of three groups in the government's ME/CFS...
ABSTRACT Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a highly contested illness. This paper analyzes the discursive...
[I didn't know where to put this - please move if needed] Seen on twitter: a “Science Journalism & Disability” Pop-up Panel & Discussion is...
The American reporter Ed Yong, who has recently written a number of well received articles on ME and Long Covid, has written a Twitter thread...
https://reutersinstitute.politics.ox.ac.uk/sites/default/files/2022-07/RISJ%20Paper_HanneO_Final.pdf?utm_campaign=Future%20of%20Journalism&utm_medi...
I'm not sure how exactly our forum members might use this type of guideline, but I came across this recently and found it interesting. Link to...
Post copied and some subsequent posts moved from United Kingdom: Action for ME (AfME) news Consultation on Media Guidelines for M.E. "This...
Moved post Predictable... predicted... happening. Ugh. When people say "1 step forward, 2 steps back" it never really accounts for the...
Hi All, Thank-you to those who completed a trial survey regarding images portraying ME in the media. Following yesterday's feedback, we have made...
Pamela had to be hospitalised after she started regularly feeling under the weather. It wasn’t until later that Pamela was diagnosed with Chronic...
August 2021 DOI:10.13140/RG.2.2.30505.72806 Conference: 2021 IACFS/ME Virtual Conference Authors Penelope McMillan, Penelope Del Fante,...
https://journals.sagepub.com/doi/full/10.1177/13634593211017187 Health: An Interdisciplinary Journal for the Social Study of Health, Illness and...
Links to posts linking to articles/videos: Jan 2021 article in the Guardian Apr 2021 article in the Guardian Jul 2021 interview video...
by Giada Da Ros Abstract: Since the end of the 20th century, the Myalgic Encephalomyelitis / Chronic Fatigue Syndrome community tried to create...
It has taken a long time for myalgic encephalomyelitis (ME), or chronic fatigue syndrome as it is also known, to be treated with the seriousness...
A WREXHAM woman has praised "brilliant" police officers who rushed to her aid in a medical emergency. Donna Vicary, from Rhos, has myalgic...
Hospital, BBC 1, 19 March 2020 FND not ME On now, this is covering FND
Daily Mail article She's a broadcasting legend and a doting mother of three. And, Esther Rantzen, 79, has revealed she is self-isolating at her...
Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients...
https://hubs.ly/H0lhw1C0 given that using the media to change perceptions about our illness has been the focus of quite a lot of campaigning, i...
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