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  1. yannlk
    Thread

    Original Patient and Doctor handouts in the PACE trial

    Hi I’m interested in having a copy of the documents in the subsection “for doctors” and “for patients” in this me-pedia page...
    Thread by: yannlk, Apr 27, 2024 at 12:12 PM, 2 replies, in forum: Historical Documents
  2. SNT Gatchaman
    Thread

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Graded exercise therapy compared to activity management for paediatric chronic fatigue syndrome/myalgic encephalomyelitis: pragmatic randomized...
    Thread by: SNT Gatchaman, Mar 2, 2024, 135 replies, in forum: ME/CFS research
  3. SNT Gatchaman
    Thread

    Patients with [long Covid] attending a multidisciplinary evaluation: Characteristics, medical conclusions, and satisfaction, Gouraud et al, 2023

    Patients with persistent symptoms after COVID-19 attending a multidisciplinary evaluation: Characteristics, medical conclusions, and satisfaction...
    Thread by: SNT Gatchaman, Sep 24, 2023, 16 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Kitty
    Thread

    Preprint "The idea of rehabilitation needs to be completely rethought for this disease" A qualitative analysis of patients' experiences, 2023, Hammer et al

    From @MSEsperanza: "The idea of rehabilitation needs to be completely rethought for this disease" A qualitative analysis of patients'...
    Thread by: Kitty, Nov 7, 2023, 6 replies, in forum: Long Covid research
  5. SNT Gatchaman
    Thread

    RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis

    https://www.goodfellowunit.org/medcases/chronic-fatigue-syndromemyalgic-encephalomyelitis Chronic fatigue syndrome/myalgic encephalomyelitis Date...
    Thread by: SNT Gatchaman, Sep 20, 2023, 54 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  6. diviho61
    Thread

    MISINFORMATION: Multiple Sclerosis Researched As Psychosomatic Condition?

    Seen the following article recently shortly after a sibling participated in a similar study...
    Thread by: diviho61, Jul 26, 2023, 8 replies, in forum: Psychosomatic theories and treatments discussions
  7. Andy
    Thread

    Review An umbrella review of randomized control trials on the effects of physical exercise on cognition 2023 Ciria et al

    Pre-print (free access) Abstract Extensive research links regular physical exercise to an overall enhancement of cognitive function across the...
    Thread by: Andy, Jan 20, 2023, 10 replies, in forum: Other health news and research
  8. user299
    Thread

    Trial Report REFUEL-MS - CBT/GET Digital Intervention MS-Fatigue

    Developing, optimising and implementing a blended digital self-management tReatmEnt for FatigUe in multiplE scLerosis (REFUEL-MS)...
    Thread by: user299, Jul 13, 2023, 25 replies, in forum: Other psychosomatic news and research
  9. ME/CFS Skeptic
    Thread

    A new consensus? - ME/CFS skeptic blog

    I've written some of my thoughts about the new reports and guidelines on ME/CFS that have been published over the past 5 years. They seem to...
    Thread by: ME/CFS Skeptic, May 17, 2023, 43 replies, in forum: ME/CFS research
  10. Sly Saint
    Thread

    The Role of Neurorehabilitation in Post-COVID-19 Syndrome 2023, Diem et al

    Abstract: Post-COVID-19 syndrome is an ongoing challenge for healthcare systems as well as for society. The clinical picture of post-COVID-19...
    Thread by: Sly Saint, May 11, 2023, 2 replies, in forum: Long Covid research
  11. Forestvon
    Thread

    GET dropouts not followed up survey

    Some time ago there was a survey sent to CFS clinics in the UK asking if they followed up dropout patients to see if they dropped out because...
    Thread by: Forestvon, Apr 29, 2023, 1 replies, in forum: UK clinics and doctors
  12. Art Vandelay
    Thread

    PERCEIVE study (GET for Long Covid): Baker Heart and Diabetes Institute, Australia

    The announcement of this study caused a firestorm on Twitter and continues to do so: [MEDIA] With the exception of a "clever" acronym, nothing...
    Thread by: Art Vandelay, Feb 20, 2023, 13 replies, in forum: Long Covid news
  13. Trish
    Thread

    The Draft Report by the Institute..[IQWiG] Does Not Provide Any Evidence That GET and CBT are Safe and Effective treatments for ME/CFS, 2023, Vink et

    The Draft Report by the Institute for Quality and Efficiency in Healthcare Does Not Provide Any Evidence That Graded Exercise Therapy and...
    Thread by: Trish, Jan 16, 2023, 8 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Purple
    Thread

    Is there evidence that GET is harmful?

    There's a thread dating from four years ago about GET and whether there is good evidence it is actually harmful. I was wondering whether there has...
    Thread by: Purple, Dec 27, 2022, 0 replies, in forum: Psychosomatic theories and treatments discussions
  15. Andy
    Thread

    Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort... 2022 Parker et al

    Full title: Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort with...
    Thread by: Andy, Dec 4, 2022, 56 replies, in forum: Long Covid research
  16. cassava7
    Thread

    Opposition to exercise therapy & psychotherapy for fibromyalgia?

    The ME/CFS patient community has long worked on debunking graded exercise and CBT as treatments for the disease but I am not aware of similar...
    Thread by: cassava7, Oct 13, 2022, 3 replies, in forum: Psychosomatic theories and treatments discussions
  17. Peter Trewhitt
    Thread

    Commentary: Graded Exercise Therapy and Cognitive Behaviour Therapy Do Not Improve Employment Outcomes in ME/CFS, 2022, Tuller and Vink

    This post has been copied from this thread: Percentage of people with ME/CFS able to work or attend school The latest Virology blog: “Trial By...
    Thread by: Peter Trewhitt, Oct 1, 2022, 15 replies, in forum: ME/CFS research
  18. chillier
    Thread

    cognitive behavioural and personalised exercise interventions for fatigue in inflammatory rheumatic diseases (LIFT), 2022, Bachmair et al

    Merged thread - article discussed first Abstract here Came across this article in the telegraph reporting CBT and exercise improves fatigue in...
    Thread by: chillier, Jun 28, 2022, 36 replies, in forum: Other health news and research
  19. Hutan
    Thread

    Interventions for the Treatment and Management of CFS: A Systematic Review, 2001, Whiting et al

    (an old paper, mentioned on another thread here) Interventions for the Treatment and Management of Chronic Fatigue Syndrome: A Systematic Review...
    Thread by: Hutan, May 15, 2022, 2 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Andy
    Thread

    2022 Brian Hughes on the NICE Guideline and what it means for care of people with ME/CFS

    Copied post The Norwegian ME Association is organising a webinar with prof. Brian Hughes on the NICE guidelines. Anyone can register on zoom for...
    Thread by: Andy, Mar 18, 2022, 7 replies, in forum: Resources
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