Hello
Another weird thread of mine.
Anyone has this feeling from being cut-off from your body from neck down?
I actually wasn't aware of this, it was subtle. I just had many dysfunctions - classical CFS, plus additional - apraxia (which is problem with cognitive-motor manual performance, like combing your hair, it was also subtle but bad enough for me to just not function fully etc)
then, I did high dose vitamin D. It helped a lot some symptoms (others made a disaster so overall i regret it and stopped it but that is offtopic), - one of symptoms it helped a lot was energy and apraxia.
What happened? First time in my life I started to have pain in brain stem area , when the pain would get stronger, I'd feel better.
It felt like my brain and body re-connected (which i maybe never even felt since as kid i already had some apraxia), and this made fatigue almost disappear.
Then I realized how the reason for my fatigue is, at least indirectly, because body is not connected consciously to the brain. Brain moves body around and my brain wasn't aware of it. It was cognitive - consciousness thing.
I also got back "awareness" of my feet (feeling would be again wrong word because I didnt have sensory issues in my feet), so when i'd squeeze my fingers on hands or feet, my brain was aware, unlike before.
So many strange things linked to body-brain connection, or awareness of connection, that made CFS much better.
Since I had to stop vit D because it made my head get very bad (some cognitive symptoms), the fatigue was back, even though I never relapsed fully with brain-body connection and never felt again like at worst when I would lay and feel liike I only have brain and cant move from neck down.
At my most 'paralized' moments maybe even my cognition worked best.
Neurologist found nothing for this, my reflexes, sensory feel in limbs, MRI, all is good.
Was just wondering how would this be linked to any of the theories on CFS, and brain stem role..
Another weird thread of mine.
Anyone has this feeling from being cut-off from your body from neck down?
I actually wasn't aware of this, it was subtle. I just had many dysfunctions - classical CFS, plus additional - apraxia (which is problem with cognitive-motor manual performance, like combing your hair, it was also subtle but bad enough for me to just not function fully etc)
then, I did high dose vitamin D. It helped a lot some symptoms (others made a disaster so overall i regret it and stopped it but that is offtopic), - one of symptoms it helped a lot was energy and apraxia.
What happened? First time in my life I started to have pain in brain stem area , when the pain would get stronger, I'd feel better.
It felt like my brain and body re-connected (which i maybe never even felt since as kid i already had some apraxia), and this made fatigue almost disappear.
Then I realized how the reason for my fatigue is, at least indirectly, because body is not connected consciously to the brain. Brain moves body around and my brain wasn't aware of it. It was cognitive - consciousness thing.
I also got back "awareness" of my feet (feeling would be again wrong word because I didnt have sensory issues in my feet), so when i'd squeeze my fingers on hands or feet, my brain was aware, unlike before.
So many strange things linked to body-brain connection, or awareness of connection, that made CFS much better.
Since I had to stop vit D because it made my head get very bad (some cognitive symptoms), the fatigue was back, even though I never relapsed fully with brain-body connection and never felt again like at worst when I would lay and feel liike I only have brain and cant move from neck down.
At my most 'paralized' moments maybe even my cognition worked best.
Neurologist found nothing for this, my reflexes, sensory feel in limbs, MRI, all is good.
Was just wondering how would this be linked to any of the theories on CFS, and brain stem role..
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