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New book: "M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome"

Discussion in 'General ME/CFS News' started by Dolphin, Nov 7, 2017.

  1. Diwi9

    Diwi9 Established Member (Voting Rights)

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    Just finished the book. It's good, it's advocacy. It's simply written and the text is spaced...plus it's very short. I will be passing this along to a friend in the medical profession. It does a good job of explaining our experience, she specifically makes the point that this is a biological disease. Her M.D. gives her similar credibility that Jen Brea benefits from because of Ivy League affiliations; hopefully this means the message will be received by readers.
     
  2. Trish

    Trish Senior Member (Voting Rights)

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    It is good in many ways, but I found for the first half I was wondering whether she had ME or burn out from doing a ridiculously large number of hours working as well as being a mother of young kids. I wondered how many other doctors would just think, OK here's one who couldn't hack it like we did and had to drop out.

    Mixed feelings.
     
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  3. Mij

    Mij Senior Member (Voting Rights)

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    No solid biomarkers, that's the problem. I read a while ago that there are 500,000 people in Canada with M.E. and just recently 800,000. I don't believe this.

    When I was diagnosed by an M.E doctor 26 years ago it was based on his many years of experience, my onset, history of relapsing etc. I had met several people through a support group who went to see him and they were dismissed as having M.E.
     
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  4. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Or maybe that helps some of them relate to it more easily.
     
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  5. Keela Too

    Keela Too Established Member (Voting Rights)

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    That was my view too. In fact I didn't read to the end, but others told me it got better. I worry that most folk won't get past the first part.
     
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