but but but... Publish findings. N=1, is it reproducible? can you confirm that # 1 is still fully recovered, back to normal, able to work out and...
Did you discuss this with AQEM? (Quebec ME organization)?
There is a Facebook group called Myalgic Encephalomyelitis Canada. Join and it will give you access to info and resources available, and you can...
Proof of concept study is typically using low number of patients, use seed grants to fund the experiment and if the experiment is successful then...
Honestly, and not related to this doctor, validation is a good mental health booster when someone face so much hostility at home in primary care....
I guess I will need trying again with recipes until I find something I like. I am not so attached to sourdough starter, don’t mind using...
I am not buy ing 10-12 $ for a loaf of GF bread. Way too expensive. I actually did my own GF starter and made 2 loaves of GF sourdough with it and...
In the last year till December, I made my own sourdough bread from my own starter. It meant that my bread’s ingredients were flours, water and...
Merged thread Medscape: How to Fix $1.6 Billion Long COVID Program: Experts Weigh In This is an opinion piece regarding the long-Covid 1.6...
There has been an excessive interest to link ME to childhood trauma, to the point where British psychiatrists have made the rounds around the...
What is *killing* me is just looking at the date this paper published, and look at the year range that was looked at, 2006-2017. One may argue...
one survey question that is highly suspect for pwME is "have you been abused as a child" It leads to researchers disbelieving the disease. The...
Shame that it will take at the very least 12-18 months to find out whether they are standing by their product (their investment) or how much...
Thank you for keeping it real @Jonathan Edwards The last thing we need for this field is telling our doctors that pollution and environment is...
Having worked in nursing for decades, the infusion pumps make noise that are noisier when they go faster. Also, a rate of 150 ml/ hr would be felt...
yes to all your post above but this certainly rings true here unfortunately.
While some of your study details cannot be shared, I'd like to comment that it could be hard to have a sham infusion when the liquid infused is...
I cannot see where the funding for this study came from. But the authors declare no conflicts of interest. Surely one of them has received funding...
I do have POTS. I assume I was already on Atenolol at the time it happened, early in my disease onset. POTS came in the package deal.
This may be a bit off topic but if you (or collaborators) are looking for research leads, I know of many, too many pwME that have a sensitivity to...
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