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Advocacy Projects and Campaigns

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  1. Andy

    Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.

    Andy, Apr 23, 2021 ... 3 4 5
    Replies:
    94
    Views:
    7,226
    Medfeb
    Jul 28, 2021
  2. Sallycatherineharris

    Do post reviews of Unrest

    Sallycatherineharris, Nov 26, 2017
    Replies:
    1
    Views:
    1,292
    Little Bluestem
    Dec 2, 2017
  3. Kalliope

    Donation to Tuller/research as respond to our critics

    Kalliope, Apr 9, 2018 ... 4 5 6
    Replies:
    103
    Views:
    11,371
    Kalliope
    Apr 28, 2018
  4. MSEsperanza

    Dutch journalist asks about pwME's objection to CBT/GET

    MSEsperanza, Aug 28, 2018 ... 2
    Replies:
    35
    Views:
    5,109
    MSEsperanza
    Sep 22, 2018
  5. Andy

    Dutch Patient Survey: Experiences of ME patients with disability assessments by UWV

    Andy, Nov 28, 2018
    Replies:
    1
    Views:
    1,177
    Pechius
    Nov 28, 2018
  6. mango

    Dysautonomia Awareness Month October 2023

    mango, Oct 2, 2023
    Replies:
    4
    Views:
    878
    mango
    Oct 28, 2023
  7. Sly Saint

    Emerge Q and A with David Tuller

    Sly Saint, Mar 16, 2018
    Replies:
    4
    Views:
    1,726
    Trish
    Apr 7, 2018
  8. Andy

    Empowerment in the Doctor’s Office: Overcoming White Coat Syndrome - Solve M.E. EmPOWER ME Conf 2019

    Andy, Jun 25, 2019
    Replies:
    2
    Views:
    1,184
    sea
    Jun 26, 2019
  9. Yvonne

    End Malnutrition in ME

    Yvonne, Mar 30, 2022
    Replies:
    5
    Views:
    1,539
    Yvonne
    Jul 10, 2023
  10. TiredSam

    EU protests: request for pictures

    TiredSam, Feb 28, 2023
    Replies:
    2
    Views:
    1,605
    Dolphin
    Mar 5, 2023
  11. ME/CFS Skeptic

    European ME Coalition (EMEC)

    ME/CFS Skeptic, Apr 19, 2020
    Replies:
    11
    Views:
    2,056
    ME/CFS Skeptic
    May 26, 2020
  12. Jaybee00

    Expert source list for journalists on Long COVID. Compiled by Fiona Lowenstein and Betsy Ladyzhets

    Jaybee00, Nov 5, 2021
    Replies:
    1
    Views:
    755
    Jaybee00
    Jan 17, 2022
  13. Andy

    Exploration of the idea of a register of patient advocates

    Andy, May 27, 2022 ... 2
    Replies:
    23
    Views:
    1,588
    MSEsperanza
    Jun 7, 2022
  14. Keela Too

    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    Keela Too, Jan 16, 2018 ... 6 7 8
    Replies:
    149
    Views:
    19,213
    NelliePledge
    Feb 16, 2018
  15. MErmaid

    Feedback Wanted: “Task” oriented Advocacy Website

    MErmaid, Feb 15, 2018
    Replies:
    2
    Views:
    2,056
    MErmaid
    Feb 16, 2018
  16. Emsho

    First Uk party policy on ME?

    Emsho, Sep 8, 2018
    Replies:
    16
    Views:
    2,034
    Sly Saint
    Sep 14, 2018
  17. Keela Too

    Format of NICE stakeholder meeting?

    Keela Too, Dec 27, 2017 ... 5 6 7
    Replies:
    133
    Views:
    13,307
    Andy
    Jan 17, 2018
  18. Andy

    Forthcoming book: 'All in your head' by Marcus Sedgwick

    Andy, Feb 6, 2021
    Replies:
    2
    Views:
    1,325
    Perrier
    Feb 6, 2021
  19. Andy

    Forward-ME Group Minutes – 21st November 2018

    Andy, Jan 9, 2019 ... 2
    Replies:
    22
    Views:
    2,913
    Trish
    Jan 11, 2019
  20. rvallee

    FraudListing.com: a project to keep track of quack treatments for ME

    rvallee, May 4, 2021
    Replies:
    7
    Views:
    1,790
    Wyva
    Jan 15, 2024
Showing threads 81 to 100 of 297

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