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Advocacy Projects and Campaigns

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  1. Andy
    Sticky

    International: Science for ME social media posts

    Andy, May 1, 2022 ... 9 10 11
    Replies:
    205
    Views:
    12,249
    Tom Kindlon
    May 5, 2024 at 12:29 PM
  2. Hutan
    Sticky

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Hutan, Sep 30, 2022 ... 2 3 4
    Replies:
    73
    Views:
    8,857
    Art Vandelay
    Feb 16, 2024
  3. Andy

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Andy, Oct 15, 2018 ... 11 12 13
    Replies:
    242
    Views:
    40,176
    Andy
    Oct 28, 2023
  4. Dr Carrot

    Improving Wikipedia's references to ME/CFS

    Dr Carrot, Jan 30, 2018 ... 10 11 12
    Replies:
    234
    Views:
    30,704
    yannlk
    May 5, 2024 at 4:38 PM
  5. Andy

    UK: Priority Setting Partnership for ME/CFS

    Andy, Mar 10, 2020 ... 10 11 12
    Replies:
    232
    Views:
    23,951
    bobbler
    May 21, 2022
  6. Andy

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Andy, Jan 7, 2019 ... 8 9 10
    Replies:
    181
    Views:
    16,621
    Robert 1973
    Feb 15, 2019
  7. Joh

    Millions Missing May 2018 - in Germany

    Joh, Feb 10, 2018 ... 7 8 9
    Replies:
    175
    Views:
    17,446
    Trish
    Jun 5, 2018
  8. Keela Too

    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    Keela Too, Jan 16, 2018 ... 6 7 8
    Replies:
    149
    Views:
    19,233
    NelliePledge
    Feb 16, 2018
  9. Keela Too

    Format of NICE stakeholder meeting?

    Keela Too, Dec 27, 2017 ... 5 6 7
    Replies:
    133
    Views:
    13,316
    Andy
    Jan 17, 2018
  10. Hutan

    Making a 'Charter for Ethical ME/CFS Research'

    Hutan, Mar 10, 2024 ... 5 6 7
    Replies:
    128
    Views:
    3,357
    bobbler
    Mar 13, 2024
  11. Webdog

    Healthwise to "retire the GET/CBT topics" from medical content

    Webdog, Apr 11, 2018 ... 4 5 6
    Replies:
    110
    Views:
    14,456
    Denise
    Feb 2, 2019
  12. Kalliope

    Donation to Tuller/research as respond to our critics

    Kalliope, Apr 9, 2018 ... 4 5 6
    Replies:
    103
    Views:
    11,386
    Kalliope
    Apr 28, 2018
  13. Sly Saint

    May 2019 - Awareness Week including Millions Missing

    Sly Saint, Feb 13, 2019 ... 3 4 5
    Replies:
    97
    Views:
    11,067
    Kalliope
    Jun 25, 2019
  14. NelliePledge

    Jen Brea tweets about U.K. Unrest campaign

    NelliePledge, Mar 27, 2018 ... 3 4 5
    Replies:
    97
    Views:
    11,514
    Diluted-biscuit
    Apr 1, 2018
  15. Andy

    Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.

    Andy, Apr 23, 2021 ... 3 4 5
    Replies:
    94
    Views:
    7,235
    Medfeb
    Jul 28, 2021
  16. Adam pwme

    New Video - The PACE trial - Part 1: Moving the goalposts

    Adam pwme, Jul 29, 2019 ... 3 4 5
    Replies:
    88
    Views:
    8,662
    Amw66
    Oct 18, 2019
  17. Robert 1973

    United Kingdom: Independent SAGE

    Robert 1973, Jan 18, 2022 ... 3 4 5
    Replies:
    86
    Views:
    9,961
    Kitty
    Jun 24, 2023
  18. Allele

    MUST Fight MUS

    Allele, Feb 25, 2018 ... 2 3 4
    Replies:
    79
    Views:
    11,766
    Inara
    Jun 22, 2018
  19. Andy

    Action for M.E. hosts DWP spotlight training

    Andy, Jan 7, 2019 ... 2 3 4
    Replies:
    78
    Views:
    8,740
    Trish
    Jan 18, 2019
  20. Sly Saint

    Funding of ME/CFS research in the UK

    Sly Saint, Feb 21, 2018 ... 2 3 4
    Replies:
    73
    Views:
    7,560
    Andy
    Oct 21, 2022
  21. Andy

    MEAction: Join Our Values and Policy Initiative! September 2019

    Andy, Sep 25, 2019 ... 2 3 4
    Replies:
    72
    Views:
    9,200
    Trish
    Sep 6, 2020
  22. ME/CFS Skeptic

    ME Action: The EU committee on petition is preparing a resolution on ME

    ME/CFS Skeptic, Feb 9, 2020 ... 2 3 4
    Replies:
    68
    Views:
    8,154
    ME/CFS Skeptic
    Jun 18, 2020
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